UK ME Association 2025: Prognosis, Permanency and Quality of Life in ME/CFS

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We have imo contradictory position where we have enough evidence that the need for early diagnosis and careful management is recognised globally & in most uk literature as being crucial to provide “best outcomes” (or conversely, prevent bad outcomes) but no clear recognition that nhs failure to do this until recently, with patient blaming narratives, contraindicated treatment approaches and sheer lack of belief and appropriate support has contributed to the current approx uk level of m.e disability of 75% can’t work, 25% house or bedbound