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UK: Irritable Bowel Syndrome (IBS) Priority Setting Partnership

Discussion in 'Gastrointestinal and Urinary' started by Andy, Mar 16, 2022.

  1. Andy

    Andy Committee Member

    Messages:
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    Location:
    Hampshire, UK
    Irritable Bowel Syndrome (IBS) Priority Setting Partnership Survey

    "What are we asking you to do?
    This is your opportunity to directly influence future research into IBS, helping to ultimately shape the diagnosis, treatment and care of the condition within the UK.

    The survey includes two sections, the first section collects some background information about you and the second section is for telling us what your questions are. You may have more than one question – we welcome up to four questions.

    Please tell us what questions you would like to have answered by research to improve the lives of people living with IBS.

    ANY question is a good question. Suggestions to think about include the treatment, diagnosis and care of IBS.

    The deadline for responses is 30th April 2022."

    https://www.surveymonkey.co.uk/r/PSP_IBS
     
    Andy, Mar 16, 2022
    #1
    Peter Trewhitt, DokaGirl, Yvonne and 1 other person like this.
  2. Andy

    Andy Committee Member

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    Andy, Mar 16, 2022
    #2
    Ariel, alktipping, Peter Trewhitt and 4 others like this.
  3. Trish

    Trish Moderator Staff Member

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    Worth doing by those of us in the UK who have IBS in the UK, to try to influence research away from poor quality CBT trials. Think about it in advance so you are ready to submit up to 4 research topics, and add a further comment if you want to. My further comment was about the poor quality CBT trials and the need for long term follow up and objective outcome measures.
     
    Trish, Mar 16, 2022
    #3
    Ariel, NelliePledge, alktipping and 11 others like this.
  4. CRG

    CRG Senior Member (Voting Rights)

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    Probably worth mentioning IBS as a co-morbidity, not just a stand alone illness. IBS in ME/CFS may be different to IBS in an otherwise healthy person.
     
    CRG, Mar 16, 2022
    #4
    Ariel, FMMM1, alktipping and 8 others like this.
  5. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    A ME specialist I saw, said IBS may preceed ME.
     
    DokaGirl, Mar 16, 2022
    #5
    Ariel, Art Vandelay, Peter Trewhitt and 1 other person like this.
  6. Andy

    Andy Committee Member

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    Location:
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    Andy, Mar 29, 2022
    #6
    DokaGirl, Ariel, Peter Trewhitt and 1 other person like this.

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