Given what we have heard from the Royal College of Physicians lately, this seems to foreshadow a renewed effort of funding clinics run by psychologists and physios to scoop up all the Medically Unexplained Symptoms people, to stop them taking up the time of doctors for proper diseases.
There is definitely a massive overwhelming push I feel happening right now, which I guess has been planned for by those behind it and sponsoring it for a while ie us very coordinated to overwhelm us and dominate and ensure no choice or debate as it is forced onto us.
And there’s nothing benign or with good intentions about what’s being offered other than the marketing spiel. I find the double-speak of those trying to take away any last bits of support any people might have so sickeningly terrifying and steeped in selling ideology like misogyny. I feel crushed.
And planned explicitly and quietly whilst the objects (I think that’s how they see us patients) we’re spending the last four years being distracted and tricked into wasting their energy having ‘conversations’ on real things for the future with people who were just stringing us along whilst telling us, the harmed under what terms we had to behave and what we were allowed to say about how much harm their past impositions on us had done.
And supported by all sorts of others who won’t admit to themselves they are being misogynistic by doing so because it’s all sanitised and convenient for them and ‘they are women’ or ‘mean no harm’ and all that crap. But it feels like those supporters who are part of making this happen need to realise this isn’t ’just Five years’ whilst we get our rights instituted but that fallacy of it being temporary is what’s led to some of us having a lifetime of this horror imposed with a ratchet that has very seriously coercive upper levels if we don’t shut up comply and pretend to be happy playing our part in what they’ve decided is our demographics lot and entitlement as a life.
Even if it’s just our body not playing ball we are to be punished for it for showing up the bs doesn’t work that everyone must believe for the charade to keep going and keeping the masses happy. And that's the bit that has been proven over the last decade ie since 2015 with the Academy of Medicine report onwards and debates showing the harm publicly and not letting it being hidden. That this approach is pure politics overwriting science or medicine.
This is people who discovered power they weren't due and are convoluting to keep it over certain segments and has nothing to do with the medicine or science they are blagging as a title to give them any mouthpiece on things. They've decided who deserves this and come up with it not based on any scientific need but some yes sinister 'belief system' that has nothing to do with making decisions based on medical need or research potential. And very sinister in how crushingly and uncompromisingly it is being rolled out over those it is 'dealing with' in such a way to remove our voice completely finally. I find it very scary and obvious those who've accidentally ended up with this power are so keen not to let go of it they will spend most of their time in manifesto propaganda writing over the medicine they are supposed to be doing in a way that shouldn't involve any of their strange 'opinions' nevermind them driving it.
Cos those part of and driving this are just finding those harmed by what they do inconvenient and misbehaving for the outcome of their 'nudges' being shown up rather than us either disappearing and hidden when harmed (as intended I now assume, or at least they didn't care if it harmed people massively). It isn't about what would be the most fair or best economic outcome for society, including those with this illness but the decision of 'how we are to be dealt with' has overridden that, and the history of it all and the need to keep covering it up (that harm these people and ideologies has done and is still doing) seems to now be a runaway train above ever staunching the harm.
the need they sell for society to treat us in this horrific way they feel is greater than the benefits of reinstituting normal rights and a standard way forward. I mean I know the physio+psych motivation is money and industry (their post-hoc justification to themselves being delusion they aren't destroying people but 'helping cos there is nothing else' which couldn't be less true). I feel we've been deliberately destroyed by having any chance of us holding onto what we earned despite being ill and foot on neck being deliberately kicked out of our way simply in order that they can keep pointing the finger at us to tell society these women are mad see, look at what a mess their life is.
And none of those mainly women enlisted to do the implementing of next round (for appearances sake)have any intention of anything other than the most breathtaking awful to be on the receiving end of and wicked active taking apart of our lives and who we are piece by piece using the most harmful side of 'psychology' and propaganda and politics and power. the way it gets enacted leaves no space to live or exist in our own lives it is so intrusive and intimately appalling.
It feels scarily strategic and managed to disappear the come to Jesus moment for me/cfs.
I don’t know regarding fibro as I’m not aware of the landscape of patients and patient organisations for that. But I do know there were some seriously dodgy ideas coming from certain ‘industry side’ individuals selling mind-body stuff that seem to have gone from niche to that person locally to somehow that getting quietly built into parts of the system in ways I struggle to understand how a decent above board system allowed to happen (nevermind being so arms open to it).
But I have observed how patients get used as pawns when they are ill and tired by individuals who want to get them to say polite things do they don’t attack them or they manipulate them by making them feel special by giving them positions they don’t want to lose that are dependent on them saying the right thing to make the staff member happy.
And having watched it and the sheer level of coercion to those who are hardest hit have common sense and are not in the most privileged position patient wise where they can play at it for those who aren’t as well-supported (and the treatment not offered less important because they aren’t crushed financially and struggling to survive but think mindfulness is a nice add on) for so so long is just so organised and heart-breaking and sickening with the dystopian paternalism dressed up as pretend care and help whilst its intention is to crush and abandon under useless silos to control them
I just find this latest sudden turn to this level of overwhelming surge of imposition of power over people and removing their voices terrifying. Even more terrifying at the idea some of those doing it might genuinely believe their own intentions aren’t all bad and harmful because of post-hoc justifications that we aren’t deserving of anything real, still, and therefore ever in our lifetime, and so this ‘something’ is kind to mollify that stupid group who just need to be kept calmed as their life is toiled by these people who I think decided this is what we get because we are female.
I’m sorry to have to say this last line but the whiff from all of these recent, intolerant, domineering people who’ve suddenly re-entered (like Burton and Deary for me/cfs) is so strongly coming off these people it’s hard not to mention it as the factor that behind our backs is this whole problem of a very big swathe with power who just want the women to be shut up and won’t listen to them and certainly aren’t ever going to give them access to a real health system or research - ie it feels like being at the butt-end of the most foot on neck misogyny at the moment. That they are trying to disguise but if you’ve been on the receiving end of it for this long it’s undeniable the is what it is whilst I know they’ll play the card to outsiders of denying that because they’ve spent so long trying to carefully disguise the proof of it so they can claim faux offence when it’s said.
But these are people it feels who think that ill females just need to be treated as whiny pains to them and their colleagues who need to be dealt with in their modern disguised version of sending us off to asylums and that’s what will happen if we don’t take the ‘softened fir modern times version’ of coercing us into shutting up and taking the community-based coercive re-education and pretending to be ok with it. It really scarily does feel like someone has got away with re-implementing their dream of this ‘to be dealt with’ new non health service bucket for those they never wanted to check what they had before they wrote off their life and freedom and hope that anyone would give them a chance at health and having it basically managed.
The laugh being the ‘standard medical care’ idea as a control for all of us when we know that for this section of society that standard was never what other normal citizens get as the standard to which we were always prevented from access.
I feel like I was part of some sick experiment a number of decades ago where someone behind the scenes decided some of us in society should be experimented on as getting an arbitrary (nothing to do with us in as far as what society should think means deserving) red flag on my notes that said let’s see if removing this persons right to medicine and gaslighting them their entire life gets them what they sell. And the twist is that if my life which it has been was taken by this from being with every opportunity as I was very clever and had it all going for me to a miserable hell lying on my back with everyone being told to keep their foot on my neck whilst blaming me then it’s somehow a sign of ‘them winning’ too because they’ve somehow ‘proven’ not that their ideology destroys even in the most capable of people but that ‘see I told you this person was and could be made useless’.
This whole experiment is just a terrifying demonstration of what happens when a system doesn’t have the right basic checks and balances and is happy to be sold that those destroyed rather than those destroying are the pests and so those doing harm must be doing good for society (and in those who see life as zero-sum I’ve realised how worryingly many are happy to see others destroyed as they are a competitor and it means more for them and them not being destroyed must mean they are great etc).
