I got my NHS pension in 2001, based on a private neurologist’s report explicitly saying my ME was lifelong, having then been diagnosed for some six years. This was strongly supported by my employing trust, which was keen for me to go, given I had been on sick leave for a year by then.
Before me most people had been turned down by the NHS pension scheme because the condition was not seen as permanent, but I was lucky in my timing in that in 1999 (I think) the NHS had issued an internal document recommending employing trusts recognise CFS as a significant disabling biomedical condition. However I since heard of others being turned down because the condition was again not regarded as permanent. I don’t know if the NHS still recognises our condition as disabling and biomedical in relation to its own employees?
My health is worse now than it was when I was forced to stop work twenty five years ago.