UK Government Delivery Plan for ME/CFS, published 22nd July 2025

Trish said:
Government plan to train doctors on ME/CFS “does not go far enough,” campaigners say (The BMJ, 28 July 2025)
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There's a rapid response to that BMJ piece from Edoardo Cervoni, Director, Locumdoctor4u Ltd. Southport

Excerpt:

Training healthcare professionals to recognise and manage ME/CFS is undoubtedly important, but it assumes a level of understanding that we do not yet possess. The proposed e-learning modules, whilst well-intentioned, risk disseminating incomplete or outdated knowledge if not grounded in cutting-edge research. Without a deeper understanding of the biological mechanisms driving ME/CFS, training may inadvertently perpetuate ineffective or even harmful practices.
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Instead, campaigners should prioritise advocating for increased funding and coordination of biomedical research to unravel the aetiology of ME/CFS, and findings to translate findings into diagnostic and therapeutic tools. Specialised research centres, staffed by experts in immunology, neurology, and metabolomics, are critical to this effort. These centres could foster interdisciplinary collaboration and accelerate discoveries, much like the approach taken in cancer research decades ago, which transformed outcomes through targeted investigation.
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He should join S4ME (unless he already has, under a pseudonym!)
 
Eleanor said:
There's a rapid response to that BMJ piece from Edoardo Cervoni, Director, Locumdoctor4u Ltd. Southport
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:heart:

Also love the acronyms.


Is anyone else disturbed every time they see 'Final Delivery Plan'? eg here on the government site and in that House of Commons briefing paper:
Policy paper

ME/CFS: the final delivery plan​

The final delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), focusing on 3 main areas to improve care and support for those with ME/CFS.
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Why not just 'the delivery plan'? I keep thinking of 'final solution' and wondering if people think that this plan is the last word on what is needed to deal with ME/CFS. I know there was an interim plan, but, still.
 
I like the idea of dueling acronyms. Two can play that game. :devilish:
  • advice about how to make best use of the energy a person have without making their symptoms worse
  • cognitive behavioural therapy (CBT)
  • medicine to control symptoms such as pain and sleeping problems
1. Leaving aside the serious issue with the 'energy' terminology, on what evidentiary basis are they claiming sufficient knowledge and understanding to be able to offer us such advice, particularly given their track record?

2. Now they are just taking the piss.

3. Getting 1 out of 3 correct is appalling, and that 1 is just generic stuff covering all medical conditions.

An additional £1 billion a year to provide a new “pathways to work offer”​

And the funding for actual honest competent productive research to assist in getting us back to work will be...?

And thank you Edoardo Cervoni, Director, Locumdoctor4u Ltd. Southport.
 
Sean said:
And thank you Edoardo Cervoni, Director, Locumdoctor4u Ltd. Southport
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Good man. I see he has varied medical interests, but in 2001 he did an otology fellowship at Green Lane Hospital in Auckland. (Back when it was still a renowned hospital doing heart and lung transplants etc, before becoming an outpatient clinical centre. There were a few interestingly named buildings, like "Hearty Towers" where the transplant recipients would wait for a donor and recuperate afterwards, and the long disestablished "Infirmary Ward for Incurables" which sounds uncomfortably close to home now!)
 
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