Andy
Retired committee member
Personally I see it as two things, rather than the one.I think the default position is that you do not even think of suggesting other researchers contact patients who have volunteered for your study.
1. The patient volunteers for the study.
2. The patient also decides if they are happy to be contacted in the future about other studies.
I don't see it as any different, in principle, from my mother-in-laws GP putting her on a list, with her agreement, of potential participants in research for the serious condition that she is affected by.
And I would suspect that if a potential participant is put off by the question of agreeing to be contacted or not for future research, then they probably aren't going to do too well at filling in the CureME questionnaire to identify if they qualify for the study or not.