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UK CMRC 2018 Conference held September 19 & 20 at Bristol

Discussion in 'General ME/CFS news' started by Sasha, Mar 6, 2018.

  1. NelliePledge

    NelliePledge Moderator Staff Member

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    and Jo Daniels
     
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  2. Sasha

    Sasha Senior Member (Voting Rights)

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    Just seen this in the Forward ME group minutes released today:

    :thumbup:
     
  3. Andy

    Andy Committee Member

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    21,758
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    Code:
    https://www.facebook.com/actionforme/posts/10156478076163209
     
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  4. Solstice

    Solstice Senior Member (Voting Rights)

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    Actually looks pretty good I think?
     
  5. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    Hmmm. Compared to my response to the iime one, still looks like lots of spaces filled with stuff outside ME & CFS biomedical research. And psychiatrist carmine pariante has two slots one on inflammation connecting brain and body, his specialism is in inflammation in depression and stress I think, his 2012 research still going on it looks like, otherwise thers just the what I call the FND MRC study, but Neil Harrison's part
    I personally see far less connection with IBS and ME than ms or sjogrens, the common pathway talk by miss someone from the NHS risks trivialising.
    I saw mind brain link, a Kings dr, Activity workshop , an FND study, (not called that). IBS, big data (again). Perhaps I have unhelpful cognitive bias regarding those words and our history. When the other tbc blanks are announced it might look more science heavy.
    Good to see uk biobank reps and MEA severe ME researchers there, both first time. The lack of science probably reflects the lack of uk activity.

    I NOTE it's called CMRC 5 years on (convenient to rebrand in 2012) & that it's " time to transform " research ,which irritates me as if it wasn't before, convenient again for MRC.
     
    Last edited: Jun 27, 2018
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  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    This looks like a very good line up to me. I might even go.
     
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  7. Trish

    Trish Moderator Staff Member

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    Please do. It would be good to have your feedback.

    There seem to be lots of gaps still, and some of the listed presenters I have no idea whether they are BPS or OK.

    Can anyone enlighten us on:
    - Prof Trepel, Trinity College, Dublin
    - Miss Rachel French, Durham and Darlington NHS
    - Prof Frances Williams, Kings College, London.
    - Dr Sue Pemberton, Yorkshire Fatigue Clinic
    - Jackie Cliff, University of Edinburgh
     
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  8. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    • Looks like miss Rachel french has expertise in Gastroenterology, probably a surgeon, I am surprised she has expertise in FM & ME

    • Professor Frances Williams Campus Dean St Thomas'
      Professor of Genomic Epidemiology

      Start date at Kings: 1/10/2007

      DepartmentResearch interests
      Genetic and omic epidemiology of chronic pain syndromes, in particular intervertebral disc degeneration as a cause of back pain; and age-related hearing impairmen

      Who has done this paper:

      Metabolomic markers of fatigue - Research Portal, King's College, London](https://kclpure.kcl.ac.uk/portal/en...ue(e34e9069-09ec-4ff4-bc67-549a81fcec11).html)

    • Prof Trefel is either a neuro scienctist or health economist. I don't know if he has any special connection to our field.
    • Sue pemberton is private OT in Leeds who runs a CFS service , along with the immunologist who was discharged from the Leeds NHS CFS service and replaced with a psychiatrist I think.
     
    Last edited: Jun 27, 2018
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  9. Sasha

    Sasha Senior Member (Voting Rights)

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    I couldn't find my way to the full programme. Has anyone got a direct link?
     
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  10. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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  11. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    I fear that this one will be all about defending business interests :sick:
     
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  12. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Perhaps, we might hope, and as a colleague was once introduced at an Italian conference I spoke at:

    'L'agnello sacrificale'?
     
  13. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    I see no butcher though. Someone that would go over the last Wilshire et al PACE paper.
     
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  14. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Well, there is a rumour that patients are allowed in the audience this time!
     
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  15. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    I looked around a little and found nothing related to ME/CFS. She appears to be involved in IBS research https://www.contactme-ibs.co.uk/

    My guess is that as consequence of interest in IBS she has contact with patients that fit some diagnostic criteria for ME/CFS.

    He is Ireland's representative in EUROMENE https://www.s4me.info/threads/trini...derstanding-of-chronic-fatigue-syndrome.3267/

    All considered this looks pretty good.
     
  16. Dolphin

    Dolphin Senior Member (Voting Rights)

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    I would put her it the better/top quartile of non-doctors that have worked in the NHS CFS-ME clinics.
     
    Last edited: Jun 28, 2018
  17. JoanNI

    JoanNI Established Member (Voting Rights)

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    No, Dr. Montoya arrives in Dublin on 15th and
    leaves for USA on Tuesday 18th, the day after our conference.
     
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  18. Nellie

    Nellie Senior Member (Voting Rights)

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    Wellcome to S4ME.
     
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  19. NelliePledge

    NelliePledge Moderator Staff Member

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    So her presence in itself will send a message to the BACME folk that they need to change to survive.
     
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  20. JoanNI

    JoanNI Established Member (Voting Rights)

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    Thank you!
     
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