UK:'Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S.' [influenced by BACME] by Sally Callow, July 2025

[Tilly]

Put all the above with this load of twaddle https://cks.nice.org.uk/topics/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me/cfs/ and we have a melting pot of the dishonesty that @Jonathan Edwards described of claiming to provide care and progress. What I see from the above is a closed system of abuse of power and authority with Charities now taking over support and advice to patients god help us as BACME will be the government go to

 

[Ash]

'We have written to the APPG on Disability rather than the APPG on M.E. because in recent months we have had private conversations with individual people living with M.E., carers, and advocates. They have each raised concerns with us about the closeness of a national charity to BACME (BACME co-created this training document and have offered ‘alternatives’ to the NICE guideline). This national charity is also a key part of the APPG on M.E. We don’t want to get into internal politics and so to avoid that, we have gone to an APPG which deals with wider disability issues ,and is currently actively working on welfare system-related issues (which this is).'

Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S. | Stripy Lightbulb CIC

A series of FOI requests have lead to the discovery of the DWP's training materials for WCA assessors. It's not good.

www.stripylightbulb.com

Good.