Andy
Retired committee member
Adam Lowe, known in some incarnations as Beyonce Holes, is a longtime ME/CFS patient and advocate in Manchester, England, served as a lay member of the committee that produced the new clinical guidance published last October by the UK’s National Institute for Health and Care Excellence. (This conversation was a follow-up to one I previously posted about his experiences on the committee.)
We also discussed other recent developments. The first was the release in May of a report called Rethinking ME by the All-Party Parliamentary Group on ME. The same month, then-health minister Sajid Javid launched an effort to promote research into the illness, boost awareness, and improve services for patients.
https://www.virology.ws/2022/07/25/...ith-patient-advocate-adam-beyonce-holes-lowe/
We also discussed other recent developments. The first was the release in May of a report called Rethinking ME by the All-Party Parliamentary Group on ME. The same month, then-health minister Sajid Javid launched an effort to promote research into the illness, boost awareness, and improve services for patients.
https://www.virology.ws/2022/07/25/...ith-patient-advocate-adam-beyonce-holes-lowe/
