#ThisIsME UK Campaign - anyone know who they are?

[Sly Saint]

I know there is a This is ME Campaign (Ireland)
anyone know who are behind this one?
Their website: https://thisismeuk.com/

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#ThisIsME
nice lil heading

Welcome to #ThisIsME, a campaign aiming to raise awareness for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, stopping the stigma one day at a time.

Lets end the stigma.
M.E. is a life-altering condition that affects millions of people around the world, yet it’s not spoken about.

under Take Action

Take Action
We’re so glad you want to help. Here are the best ways to get involved with the cause.

I want to share my experience
Would you like to share your story with us, or submit a quote for one of our #ThisIsME or #MEislike campaigns? We’re always looking for contributors and would love to hear from you. There are several ways to get in touch:

• Send us an email at ukthisisme@gmail.com.
• Send us a direct message at one of our social media channels, Instagram or Twitter @ukthisisme.
• Send in submission form at our Contact page.

I want to make a donation
Firstly, thank you! Any contribution furthers the effort to help ME/CFS regain control of their lives. While #ThisIsMe does not have a direct donation service, we can direct you to recognised ME/CFS charities that will use your contribution for wonderful purposes.

• ME Association- donate here
• ME Research UK- donate here
• Action for ME- donate here
• ME Action- donate here

I want to help raise awareness
Raising awareness for ME/CFS is a group task and the more people that join in and help, the more effective the movement will be.

eta: their twitter ac https://twitter.com/ukthisisme

 

[InitialConditions]

hmm. with all due respect, looks like a poundshop ME Action. ;-)

I could see this being the personal project of one person.

 

[Trish]

Exploring the website I find this:
https://thisismeuk.com/what-is-me/

Symptoms
Symptoms can differ in range and intensity depending on the severity of the individual’s condition. They will generally include:

• Extreme, debilitating fatigue
• Muscle pain
• Sleep problems
• Brain fog and difficulty concentrating
• Loss of stamina
• Headaches and migraines
• Slurring or loss of speech
• Heart palpitations

So no mention of PEM. That's a big problem.

It appears to be a nameless blogger with a personal project of raising awareness of ME by creating posters that presumably anyone can use with quotes from people with ME on them to try to debunk myths and say what ME is really like. They are inviting people to contribute ideas and quotes for posters, I think.

Not a bad idea, though I'm not particularly keen on pink posters.

Edited for clarity.

Edit to add: They are not asking for any money, suggesting instead ME charities to donate to.

 

[adambeyoncelowe]

The website is still under construction, it seems, and the design does lean heavily on that of #MEAction, even including the hashtag.

 

[Diluted-biscuit]

hmm. with all due respect, looks like a poundshop ME Action. ;-)

I could see this being the personal project of one person.

There’s all kinds of activism.

 

[NelliePledge]

maybe a student project

 

[Barry]

Looks like it should not have been publicly deployed whilst still in such early construction.

 

[Trish]

Looks like it should not have been publicly deployed whilst still in such early construction.

I disagree. It looks like a small personal project that is sufficiently ready to be visited and with posters ready for people to use. They are inviting more people to suggest ideas for posters.

Seems fine to me. I can imagine people using the posters on social media to raise awareness.

 

[Barry]

I disagree. It looks like a small personal project that is sufficiently ready to be visited and with posters ready for people to use. They are inviting more people to suggest ideas for posters.

Seems fine to me. I can imagine people using the posters on social media to raise awareness.

I really meant this sort of thing:

 

[Esther12]

There’s all kinds of activism.

Yes, and there's so much uncertainty around ME that lots of people will have slightly different ideas on things. If it's alright and well meaning, worth making suggestions in as friendly a way as possible imo.