Discussion in 'Health News and Research unrelated to ME/CFS' started by Cheshire, Dec 29, 2018.
Open access here.
Many similarities with the PACE flaws:
So we now have a SMILE trial for LP in kids with ME, and a SMILES trial for diet changes for people with depression with a smiley face made out of fruit. I detect a correlation between infantile trial names and bad science.
I wonder what would be the effect of calling a trial the FROWN trial, the GRIMACE trial, or perhaps even the EVIL trial.
There recently was an IMAGINE trial in the Lancet Gastrology claiming that hypnotherapy decreases symptoms in irritable bowel syndrome (don't think it was discussed here). Unblinded with subjective outcomes of course. It also reminded me of the PACE-trial. See for example this quote:
No it bloody well isn't.
Where does that snippet come from @Trish ? It is a real howler.
Second sentence in the section Michiel quoted in the post before mine. From the IMAGINE trial. The whole paragraph he quoted is an expanded version of the same thing.
Yeah, how cynical that they chose to call their trial IMAGINE and make such statements in their main paper.
.....maybe the researchers are John Lennon fans?
' ......imagine all the people, living life in PACE' (?)
I had to check and the study name specifically says it's for adults. They're trying to convince depressive adults that a smiley face banana will cure them, or something. And it seems like PACE set a sort of precedent with its newsletter with quotes promising a cure during the trial. That this was not severely punished made it acceptable moving forward. Very bad.
Can't they do those studies without being extra condescending? I get it, some people require some extra coddling but this assumption that everyone who doesn't have a medical degree is a drooling idiot is a bit grating and very misguided.
All I could think of:
Best I could do on short notice:
Exercise promoted Viley to cause Injury and Lethargy trial.
From completely unfounded speculation to The Indisputable Truth, in one step.
Nice work if you can get it.
Statements like these make it clear that it's time for patients to take on a larger role in medicine and speak for themselves.
Separate names with a comma.