The Mighty: ME/CFS Patients and Allies Are Rallying Worldwide to Demand Better Treatment [Millions Missing]

[Andy]

The “millions missing” from life due to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are coming together worldwide to fight for their future, and you can help.

To recognize ME/CFS Awareness Day, people with ME/CFS and their allies will hold public demonstrations and participate in a social media campaign on May 12 to raise awareness of the seriousness of the condition and call on government health officials to finally begin dedicating real strategy and funds to research and treatment.

The event, a global campaign of advocacy organization #MEAction, is called #MillionsMissing. The hashtag represents the estimated 15 to 30 million people around the world who have ME/CFS and are prevented from living full lives due to symptoms like extreme mental and physical fatigue, post-exertional malaise, pain, immune dysfunction and sensory sensitivity. The disease has no FDA-approved treatments or cure.

Now in its third year, #MillionsMissing is a collaboration between #MEAction and Stacy Hodges, a patient from North Carolina who came to the organization with the idea to do a protest in Washington, D.C. In 2016, protests were held in 24 cities. This year, there are more than 95 public events planned around the world, including the U.S., U.K., Australia, New Zealand, Mexico, Canada, Japan and more. (Click here to find a demonstration near you.)

https://themighty.com/2018/05/milli...ue-syndrome-myalgic-encephalomyelitis-events/

 

[Pen2]

You know what @Andy?! Of course I want to be a part of this awareness...right?! Everything I try to do won't work for me!

I tried to buy t-shirts...nope. I tried to share the ME article above...nope. I get so exausted. I'm sure it's me, Mush brain and computer illiterate. Like many, why I had to stop working.

It reminds me of my Mom, she wouldn't have anything to do with computers.
I won't stop trying. @Luther Blissett knows my computer woh's Sorry Luther Blisset.

Thank you for posting.
I always give Big Hugs,