Acknowledgements
The GW4 Fatigue community consisted of researchers, clinicians, and individuals with lived experience of fatigue who attended one or more or four online workshops held between November 2023 and March 2024. Those who consented to be named are listed in Supplementary Material 3.
Supplementary Material 3. Members of the GW4 fatigue community who participated in one or more of the four workshops as an attendee and agreed to be named in this report.
Aaron Greenhouse-Tucknott, Cognitive Neuroimaging Unit, Institut National de la Santé et de la Recherche Médicale, Commissariat à l'Energie Atomique et aux énergies alternatives, Centre national de la recherche scientifique, Université Paris-Saclay, France
Bethan Thomas, School of Healthcare Sciences, Cardiff University, UK
Brittany Nocivelli,, Centre for Trials Research, School of Medicine, Cardiff University, UK
Christopher Russell, Vivisco Limited, UK
Caroline Dalton, Advanced Wellbeing Research Centre, Sheffield Hallam University, UK
Claire Nollett, Centre for Trials Research, Cardiff University, UK
Deborah Edwards, The Wales Centre for Evidence Based Care, School of Healthcare Sciences, Cardiff University, UK
Diana Robinson
Ezio Preatoni, Department for Health, University of Bath, UK
Fiona Leggat, School of Health and Medical Sciences, City St Georges, University of London, UK
Gemma Brownbill, School of Sport, Exercise and Health Sciences, Loughborough University, UK
Helen Dawes, NIHR Exeter Biomedical Research Centre, Medical School, University of Exeter, UK
Jennifer L Davies, School of Healthcare Sciences, Cardiff University, UK
Joanna Rutkowska-Wheeldon, Cardiff and Vale University Health Board, Cardiff, UK.
John Derek Franklin, Kleijnen Systematic Reviews Limited, UK
Kate Button, School of Healthcare Sciences, Cardiff University, UK
Katrina Burchell, Pernicious Anaemia Society, UK
Monica Busse Morris, Faculty of Nursing, Midwifery and Palliative Care, Kings College London, UK; and Centre for Trials Research, School of Medicine, Cardiff University, UK
Nick Courtier, School of Healthcare Sciences, Cardiff University, UK
Paulo C. R. Santos, IDOR / Pioneer Science Initiative, Rio de Janeiro, Rio de Janeiro, Brazil; Department of Computer Science and Applied Mathematics, Weizmann Institute of Science, Rehovot, Israel; and Center of Advanced Technologies in Rehabilitation, Sheba Medical Center, Ramat Gan, Israel.
Pavlos E. Evangelidis, Public Health and Sport Science, University of Exeter, UK
Rachael Pattinson, School of Dentistry, Cardiff University, UK
Rhiannon Jones, School of Medicine, Cardiff University, UK
Rhys Denton, Centre for Trials Research, School of Medicine, Cardiff University, UK
Samit Chakrabarty, School of Biomedical Sciences, University of Leeds, UK
Timothy Pickles, Centre for Trials Research, Cardiff University, UK
Willow Holloway, Disability Wales, UK; Autistic UK; Fair Treatment for the Women of Wales, UK; and The Autistic Women’s Empowerment Project, UK
Funding
This work was funded by a Building Communities award from GW4 to JD, HD, DE and MBM (
https://gw4.ac.uk/community/gw4-com...in-people-with-multiple-long-term-conditions/).
Notes on contributors
Jennifer L. Davies
Jennifer Davies is a Senior Lecturer at the School of Healthcare Sciences, Cardiff University. Her research focuses on the neural and muscular control of human movement, with particular interest in how sensory information, motor coordination, and muscle activity are affected by factors such as stress, anxiety, and fatigue. She leads interdisciplinary work exploring the mechanisms underlying physical fatigue in both health and disease, integrating approaches from movement neuroscience and rehabilitation science.
Helen Dawes
Helen Dawes is a rehabilitation scientist and physiotherapist at the University of Exeter and Co-Director of the Rehabilitation Theme within the NIHR Exeter Biomedical Research Centre. Her research investigates the mechanisms and management of fatigue and its cognitive and physical correlates across neurological, post-viral, and chronic conditions. She leads translational research aimed at improving rehabilitation outcomes and interventions for individuals experiencing fatigue.
Ezio Preatoni
Ezio Preatoni is Senior Lecturer in Biomechanics at the University of Bath. His research lies at the intersection of human movement science, biomechanics, and sensor technology, with a focus on understanding how fatigue influences coordination, variability, and performance in sport and health contexts. His work contributes to developing novel approaches to quantify fatigue and to optimise recovery and performance in physically demanding settings.
Deborah Edwards
Deborah Edwards is Principal Research Fellow at the Wales Centre for Evidence Based Care, Cardiff University. Her expertise lies in evidence synthesis and methodological development to support the design and implementation of complex healthcare interventions. She contributes to advancing understanding of fatigue through systematic evaluation of evidence.
Bethan Thomas
Bethan Thomas was a doctoral researcher at Cardiff University at the time of this work, and is now a postdoctoral researcher. Her work focuses on the mechanisms underlying fatigue in long-term health conditions and explores physiological, sensory, and cognitive aspects of fatigue, with the aim of contributing to a better understanding of how fatigue develops and persists, and how it may be mitigated through targeted interventions. She worked as a research assistant within the GW4 network studying fatigue in people with multiple long-term conditions, from which is work is based.
Rhiannon Jones
Rhiannon Jones was a student at the School of Medicine, Cardiff University at the time of this work and is now a foundation doctor within Hywel Dda Health Board. She worked as a research assistant within the GW4 network studying fatigue in people with multiple long-term conditions, from which is work is based.
Brittany Nocivelli
Brittany Nocivelli was a doctoral researcher at the time of this work and is currently a Research Associate in the Centre for Adult Social Care and DECIPHer centres in the School of Social Sciences at Cardiff University. She works to improve research inclusivity of underserved, vulnerable populations and the development of interventions to empower underrepresented populations to participate in research. She worked as a research assistant within the GW4 network studying fatigue in people with multiple long-term conditions, from which is work is based.
Rhys Denton
Rhys Denton is a Research Manager at Centre for Trials Research in the School of Medicine at Cardiff University. He worked as a research assistant within the GW4 network studying fatigue in people with multiple long-term conditions, from which this work is based. His interests lie in research accessibility, and he contributes his lived experience of fatigue as a researcher and as a public contributor.
Caroline Dalton
Caroline Dalton is Reader in Neuroscience and Genetics and Theme Lead for Living Well with Chronic Disease at the Advanced Wellbeing Research Centre at Sheffield Hallam University. Her research spans Long COVID and ME/CFS, physical-activity interventions, symptom monitoring, wearable devices and fatigue. She has authored intensive-longitudinal studies exploring within-person predictors of physical activity and fatigue in Long COVID, advancing understanding of symptom-activity dynamics.
Monica Busse Morris
Monica Busse Morris is a physiotherapist and clinical trials methodologist, specialising in mobility, lifestyle interventions and rehabilitation in complex chronic disease. She led major interventional trials in Long COVID, including a self-management support intervention (LISTEN trial) that reported significant reductions in fatigue impact. Her work bridges mechanism, mobility and rehabilitation strategy in fatigue-bearing conditions.
