The Body - The Complete HIV/AIDS Resource Journalist Olivia G. Ford Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight for the #MillionsMissing Simpson and Wilder both use the skills they've gleaned over decades as HIV activists to understand who has the power to make changes that will lead to improved lives for people with ME, such as lawmakers, state health departments, and federal public health and research bodies -- and to put pressure on those targets. Wilder has made progress getting ME on the agendas of several New York legislators and worked with the state department of health on several ME-related educational measures, including building a website about ME. Further, the U.S. National Institutes of Health is slowly shifting its research priorities regarding ME. These are important steps, but in the HIV community, we know that shifts in culture and priorities take time -- and pressure. "I feel like we are at June 5, 1981," Wilder stated. "I need to get us to at least 1996."