"The Alienated Patient" - Julian Galt MD

Mij

Senior Member (Voting Rights)
Left Behind by Modern Medicine

Julian Galt, MD

"Modern medicine has produced a vast and growing class of patients with chronic, unexplained symptoms. They are everywhere. I encounter them daily in the ER, and they are easy to find on social media, where whole communities have formed to share grievances and trade theories. These patients are not malingerers. They are genuinely suffering. Yet, the structure of medicine today leaves them stranded, repeatedly told what they do not have while receiving little help in discovering what they do.

Their episodes are uncomfortable but not immediately dangerous. They dutifully see their primary care physician, who, reluctant to miss something catastrophic, refers them to the emergency department. There, a battery of tests is ordered: blood work, imaging, an electrocardiogram. The physician expects these studies to be negative, and they usually are. Occasionally, two or three values stray just beyond the arbitrary limits of “normal.” An albumin slightly elevated. A relative eosinophil count slightly low. These anomalies are clinically meaningless, yet they appear in the patient’s electronic record, flagged with red exclamation marks.

The doctor tells the patient that the results are “reassuring” and may even summarize them as “normal.” What the patient hears is something altogether different. They see flagged results on MyChart, but hear from the doctor that everything is fine. To them, this feels like dismissal or even dishonesty. They believe their symptoms are real and are unsettled by the presence of abnormalities on objective tests. When told there is no emergency, they interpret the message as “nothing is wrong with you.” They leave not reassured but alienated . . .

This cycle repeats. The patient returns to their primary care office, where liability concerns again often dictate referral to the emergency department. Once more, the ER performs its ritual exclusion of life-threatening pathology. Each time, the patient is told that no emergency exists. Each time, the patient hears that their suffering has no cause and deserves no explanation. Their visits multiply. Their frustration grows.

Over time, the patient’s medical record accumulates dozens of encounters. Emergency physicians opening the chart let out a sigh before they enter the room. They see a long trail of “negative workups,” innumerable phone calls, and the note that this individual is a “frequent flyer.” The patient’s symptoms remain unexplained, but now their chart contains a new label: “difficult patient . . ."
 
I've been called delightful too. And, apparently, when patients ask doctors about it, they always say it just means what it says. As a typical non-trusting patient, of the type mentioned in the linked article, I think this is BS.

...

One of my pet theories for many cases of undiagnosed health issues is the problem of hugely wide reference ranges for lots of different tests. For example, the last time I had my ferritin level checked the reference range was 30 - 332 micrograms/L.

This suggests to me that a doctor seeing such a reference range would tell me that a result of 30 or a result of 332 or anything in between are all "fine" or "normal" - and are effectively "the same". This, in my opinion, is absolute nonsense.

I've seen lots of results for ferritin from the USA where doctors tell (mostly female) patients that results of 4 or 6 (I can't remember the units of measurement) are "close enough" to the reference range and don't need treatment.

And a final comment that I've said before...

If A has disease X and good nutrient levels they will most likely feel better than B who also has disease X but low levels of nutrients, even if improving nutrients is not going to cure disease X.
 
I've seen lots of results for ferritin from the USA where doctors tell (mostly female) patients that results of 4 or 6 (I can't remember the units of measurement) are "close enough" to the reference range and don't need treatment.

I saw a new GP in 1996 who asked if I was vegetarian b/c my ferritin was at 5, I told her no, then she went on to tell me that a low number is only seen in vegetarians. I told her I eat liver cooked in cast iron skillets but she didn't believe me I guess. She told me to take iron, and when I saw her 6 weeks later, she said my ferritin should be higher and she'll start looking at 'other possibilities'. When I asked what other possibilities, she said, well I told you to take x2 tablets a day (which I did). It can take up to 9 months to increase ferritin up to 50. I saw her one more time after that and was fortunate to find another GP.

Two years ago my province changed the ref range for ferritin. Results less than 30 µg/L for adults (≥18 years of age) will be flagged as low, 51 – 100 µg/L indicate a possible iron deficiency.
 
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