Swedish Government: More knowledge is needed to better support people with CFS

Dagens Medicin: Kunskap om kronisk trötthet för låg
https://www.dagensmedicin.se/artiklar/2018/05/07/kunskap-om-kronisk-trotthet-for-lag/

https://twitter.com/user/status/993377273452613632

 

Läkartidningen: För dålig kunskap om kroniskt trötthetssyndrom
http://lakartidningen.se/Aktuellt/Nyheter/2018/05/For-dalig-kunskap-om-kroniskt-trotthetssyndrom/

Läkartidningen is a medical journal published by the Swedish Medical Association.

 

https://twitter.com/user/status/993170094187515904

 

Have you had a look at the comments on Dagens Medicin's article? The website is only for healthcare professionals. Every time they publish something on ME, the clowns show up... For example, this comment:

https://www.dagensmedicin.se/artiklar/2018/05/07/kunskap-om-kronisk-trotthet-for-lag/

"DL Stockholm 7 May 2018 13:33
The knowledge is sufficient as it is. "ME" has been researched since the 60's and no studies have shown intrinsic neurological or autoimmune disease. Neither PET, SPECT, CT, MR, spinal taping, samples or even patomorphological examination of nerve cells have shown anything different in either brain or spinal cord. What are we to learn more about? Is the government starting to create a new "electricity allergy"? Are we back in the 90's again? Mass hysteria is undoubtedly on the rise now when Aftonbladet [one of Sweden's largest evening newspapers] has taken on the role of hobby doctor. And when it's election year, any silliness at all can come pouring out of the government office. We live in Absurdistan..."

And they are supposed to be healthcare professional??

However, there's also a commenter called Sten, who is doing an absolutely brilliant job every single time! He's amazing, and I'm super grateful for all the effort he puts into writing excellent comments, over and over again

 

Here’s to Sten, where ever and whoever you are!

 

I agree with the applauds to Sten. I´m sure he is reading this. You are doing a really great job!

Actually, that comment can´t let me down. There is a group of unknowledgeable people, whatever agenda they have, and they will surely continue until, and even after, ME/CFS has been confirmed genetically and/or with a biomarker. I prefer to ignore them, and look at all the good that has come out since the last 6 months. The tide is unstoppable now, in my opinion.

Writers like that one, is only making himself a fool. It will be evident sooner or later.

 

Wow. The ignorance. The wilful disdain. Then the casual racism at the end. He's also wrong on several fronts.

 

Here's a news article from 2009, about the book one of the above experts wrote.

https://www.metro.se/artikel/det-kan-vara-farligt-att-vara-sjukskriven-xr

(I haven't been able to find anything about their views on ME, CFS or MUS etc specifically. Except for the mention of "yuppie's disease" in the quote above.)

 

In the attached slide we perhaps learn a bit about the expert's understanding of correlation and causation?

Very rough translation:

"Longterm sick leave
Earlier means more dangerous

Those who take early retirement due to an illness or disability at a young age (25-30 years old) run approx 7-8 times higher risk of dying early compared to people of the same age who have not taken early retirement due to illness.

It is less dangerous to smoke 20 cigarettes a day than to take early retirement due to an illness."

Source: https://slideplayer.se/slide/11266026/

 

What an absurd conclusion....? Surley the risk for early death are linked to, you know - beeing sick???

So, actually beeing sick have more of an impact on your health than smoking, who would have known......?

 

This does not look good.

 

Yeah, because of poverty and disease. It is well-known that richer people get older in average.

 

It is true that "stress" is not a disease, it is a mostly meaningless buzzword used to mean all sorts of things.
See:
http://journals.sagepub.com/doi/10.1177/1745691616635593

Leaving work due to "stress" is a bad idea. Instead there are more meaningful underlying reasons.

But ME or CFS are not due to stress. So it seems strange that they'd have someone who researchers "poor health from seeking healthcare". https://katalog.uu.se/profile/?id=N2-1108

Fatigue syndrome - a diagnosis with scientific deficiencies Per Lytsy
https://translate.google.com/transl.../Functions/OldArticleView.aspx?articleId=9547

 

The project manager at SBU is Agneta Pettersson. Her interests seem to be depression and anxiety... at least according to this and this.