Study finds alarming rates of anxiety and depression in children with long COVID

[alex3619]

None of us or these children are going to trust doctors ever again.

I started this journey into disability as a pro-authoritarian and pro-medical doctor supporter. Failure after failure from authority figures, especially doctors, left me highly skeptical. I am now asking why research is so often ignored, including research failures. I second guess everything a doctor tells me, and go away and investigate before I believe them. I often explain the science to them, which they refute, then they go away and investigate and I never hear them refute it again. Either that or they decided to ignore the "crazy" in their office. This last year I have had doctors claiming one of my positively diagnosed problems, that cannot be anything else, does not exist and not do even the most simplistic investigation. Really? Several of my issues only hit less than 1% of the population, even before we get to ME, but they seem unable to look up a medical dictionary or database. I got my BSc in Biochemistry in part to navigate these waters.

Following medical advice has cost me millions of dollars in lost wages; fifteen years of severe pain followed by five with moderate pain, my entire social life except for online, my sports and hobbies, several careers, many friends, and trust in most medical advice. Everything has to be investigated or I don't trust it. These failures were not just a one off, they were year after year, decade after decade, and included many "experts". I have a good grasp of why many of us do not trust the medical system. Following medical advice would have killed me decades ago.

I also do health hacks to test ideas all the time, including early testing of high dose omega 3s for ME (1993), my shotgun protocol that reversed all my systems and then I started getting new ones and going broke, and many other issues. Like I take resveratrol for my breathing issues, but not like any guidelines say. I got to this by an hypothesis, followed by testing and retesting, using methods I developed for my shotgun protocol. Even when advice is well intentioned, or backed by science to show it works for 99% of people, we have to cautiously test things. Even when it works it has to be adapted to our needs.

 

[Sean]

These are questions research psychiatrists should be asking, but almost never do.

Asking (honest) questions about PTSD in ME/CFS, including where it lies in the causal chain, would require them to also ask why patients have PTSD in the first place.

The (honest) answers to which they are unlikely to find comforting or flattering, and which are likely to seriously diminish their profession's reputation and authority, well beyond just ME/CFS.

Maybe even trigger a major civil war inside the profession over psychosomatics.

As it should. Time they sorted themselves out. Shouldn't be our job, and we should not be paying the price for their persistent decades-long failure to keep their house in order.

None of us or these children are going to trust doctors ever again. That genie never goes back in the bottle. We will have been the victims of systemic abuse for years, decades, none of us is going to be seeking out the same therapists that harmed us and maligned our disease. Frankly I think its a dangerous moment if we get a drug that helps us, I think it will free a lot of people who have been abandoned by everyone from their beds and who already lost everything, its a powder keg of state abused induced PTSD and anger. These children will be messed up for the rest of their lives, as will we. We wont trust others ever again, this is going to change the way generations behave and how they bring up their own children and how they see the role of government and medicine in our lives.

Yep. And those responsible will exploit that to further psychologise and defame us, and continue asserting their authority over us.

'See, we told you they were mentally ill!'

 

[alex3619]

You =

Asking (honest) questions about PTSD in ME/CFS, including where it lies in the causal chain, would require them to also ask why patients have PTSD in the first place.

Me = deep chuckle

 

[rvallee]

I think there is a lot right now, just being ignored.

PTSD is an extreme response to extreme events. I don't think there's much of that here, probably mainly from those who, at some point, were sure they were going to die. Although by % it's a small number, it's probably still a lot of people, but the average clinician or therapist will likely never encounter one.

There is a lot of mistrust, justifiably so. It's worse than passive negligence, it's the outcome of blatant breach of a huge power imbalance, like being beaten by a police officer who then gets protected by everyone up the chain. People are justified in losing trust in those systems, and it's entirely the fault of those systems, their choice.