Alvin
Senior Member (Voting Rights)
Thank youThat's the best concise summary of supporting evidence of fraud I have read.

Thank youThat's the best concise summary of supporting evidence of fraud I have read.
I think the trial minutes are very valuable in this regardProving the 'to' is difficult though
And the smart.Fortune favours the bold.
Hurling accusations like this – along with delivering secret lectures — simply suggests that Sharpe cannot reply persuasively on the merits.
Which brings us back to my original question. Given that Sharpe claims to speak for “a large group of researchers,” why haven’t the others disassociated themselves from his intemperate tweets?
GET is not safe for any ME sufferers, including mild. If they had been asked to find the most effective way to make a mild sufferer moderate, and a moderate sufferer severe, GET would be an appropriate answer."these treatments are safe and useful for some patients"
Indeed. Our time is nowTiming matters too.
Yep.@Esther12 and @Alvin I think there is room for both approaches. All movements have those more moderate and working sometimes from the inside, and those who are more aggressive and shout from the outside. I think in general both are needed for progress. I don't think Lubet's post is actually trying to persuade people to ignore that the things they did were pretty bad. He's just conducting a thought experiment: Even if we were to agree to put these things aside, there are still major issues with the PACE position. That's not the same as saying, Hey, let's put all these things aside forever. He's not absolving them of anything. He's making an argument.
Just got this image in my head of you in an ME clinic. Doctor: Would it help if we broke your leg?GET is not safe for any ME sufferers, including mild. If they had been asked to find the most effective way to make a mild sufferer moderate, and a moderate sufferer severe, GET would be an appropriate answer.
It might be safe for patients suffering from something else, but why should anyone involved in ME research be interested in that? Putting a plaster cast on my leg is safe and useful for some patients, especially if they are suffering from a broken leg, but so what? That doesn't make it an appropriate treatment for ME, and having to lug a cast around would probably make my ME worse too, which would be especially annoying if I didn't even have a broken leg.
I think ages ago I suggested the following response on the "annoying things people say thread":Just got this image in my head of you in an ME clinic. Doctor: Would it help if we broke your leg?
Is there any evidence from any trial that people with ME/CFS significantly increased what they could do following these therapies?"These therapies help many people with CFS/ME by reducing symptoms, increasing what they can do, and improving their quality of life."
"Right now there are no alternatives for patients, so it is vital that they are not deterred from accessing therapies that can help them."
And if you had to admit there was essentially nothing , you might have to think about seriously funding some research....We had this from Sandford at the RSM meeting a year or two ago. The idea is that you have to have some treatment otherwise you might have to tell the patients that you have nothing to offer and that would never do. It is an indirect admission that in fact the treatment does not work. If it did this argument wouldn't even be raised.
We had this from Sandford at the RSM meeting a year or two ago. The idea is that you have to have some treatment otherwise you might have to tell the patients that you have nothing to offer and that would never do. It is an indirect admission that in fact the treatment does not work. If it did this argument wouldn't even be raised.
+1Yes, instead of being fobbed off with bull***t therapies that blame patients for being unwell and make many feel worse, I would much rather be told:
“Although you meet the diagnostic criteria for ME/CFS, we don’t yet understand the pathology of your condition, and there are no proven effective treatments. However, it is important that we continue to see you regularly so that we can monitor your condition, help to manage some of your symptoms like pain and sleep disturbance, offer you practical and psychological support to help you cope with your illness and disability if you need it, and to improve our understanding of your condition through close observation. If you would like to volunteer, we would also like collect data and samples for the purposes of research. There may also be opportunities to participate in clinical trials and to try experimental treatments. Please be assured that we understand what you are going through. We are doing everything within our powers to try to further our understanding of the pathology of your condition. It is only a matter of time before diagnostic tests and effective treatments are developed. In the meantime we are always here if you need to speak to anybody about any aspect of your illness – and if you’re not well enough to come to see us, we will come to see you.”
Of course, such a statement would not be true. But it should be. And it would be refreshing to hear.
The resident then added Hopefully someday we will have moreAlthough you meet the diagnostic criteria for ME/CFS, we don’t yet understand the pathology of your condition, and there are no proven effective treatments.