Spotlight on ME/CFS: Who is lobbying whom? Parts 1 and 2 by Jo Hunt, 2022

[Trish]

Blog posts on the blog called Healthcare Hubris
Spotlight on ME/CFS: Who is lobbying whom? by Jo Hunt
part 1
part 2

Covers some of the interactions between Wessely, Aylward and White and the DWP in the early 1990's based on archive material obtained using FOI by Valerie Eliot Smith.


Link to Valerie's blog with the archived material:
https://valerieeliotsmith.com/

 

[Peter T]

Good to see this historic BPS (or rather unevidenced psychologising) use of lobbying to highjack ME as psychogenic chronic fatigue set out so clearly.

 

[DokaGirl]

From Part 2:
Brain tumour cited by one medical lobbyist as corrected diagnosis, instead of the mistaken diagnosis of "cfs".

Just this one case should have sounded a warning bell that was heeded. Where was caution and care in this long-standing scenario? Nowhere, it seems.

Really unimaginable, and outrageous that an entire health care system would be officially guided away from thorough testing of patients with these complex and debilitating symptoms. But it happened, and with a completeness that has harmed innumerable pwME for decades.