Sophia Mirza

Sly Saint

Senior Member (Voting Rights)
2025: We have copied and moved some posts to create a thread about Sophia
We have an In Memory thread for her here

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we should also remember Not forget Sofia Mirza; her pleas with the psychiatrist and people who forcibly removed her from her home should haunt those responsible.

https://voicesfromtheshadowsfilm.co.uk/
 
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Posts moved from the Maeve Boothby thread

I will qualify that by saying she didn’t starve or dehydrate whilst asking for food.

We, of course, can see many similarities.
she is one of the few who have ME (CFS) on her death certificate. From memory, officially it was kidney failure due to CFS.
But it very much shows the institutional mistreatment of pw severe ME, and highlights the point of ME being treated as a psychological illness (being forcibly removed from her home with a psychiatrist controlling the events).
 
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she is one of the few who have ME (CFS) on her death certificate. From memory, officially it was kidney failure due to CFS.
But it very much shows the institutional mistreatment of pw severe ME, and highlights the point of ME being treated as a psychological illness (being forcibly removed from her home with a psychiatrist controlling the events).


Sophia Mirza's Brighton GP instigated the sectioning. The GP went from psychiatrist to psychiatrist until she found one willing to section Sophia. The first 2 psychiatrists said No (to their credit), as far as I remember. The GP also tried to persuade the psychiatrist to section Sophia's mother and carer Criona. The psychiatrist said No.


All the documents relating to the sectioning of Sophia, medical records, letters between GP and psychiatrist, social services correspondence, Sophia's mother's complaint to the GMC, etc are all online on the site 'Sophia and ME'

The documents are on the right.

Sophia and M.E.
http://www.sophiaandme.org.uk/


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If Sophia Mirza died of renal failure that would be most likely due to not getting enough food and drink. ME or CFS would not bring about kidney failure otherwise as far as is known.
There may have been an infection but infection is a very common terminal event in people who are starved.
 
If Sophia Mirza died of renal failure that would be most likely due to not getting enough food and drink. ME or CFS would not bring about kidney failure otherwise as far as is known.
There may have been an infection but infection is a very common terminal event in people who are starved.

"The extensive post mortem showed up no cause of death. We requested an independent neuropathologist to research Sophia's spine. The findings confirmed that it contained massive infection. At the inquest the Coroner confirmed that "She died as a result of acute renal failure arising from the effects of chronic fatigue syndrome (CFS)"/ M.E."

Sophia and M.E. (sophiaandme.org.uk)


eta:
In July, the professionals returned - as promised by Dr. Baginski. The police “smashed the door down” and Sophia was taken to a locked room within a locked ward of the local mental hospital. Despite the fact that she was bed-bound, she reported that she did not receive even basic nursing care, where her temperature, pulse and blood pressure (which had been 80/60), were never taken. Sophia told me that her bed was never made, that she was never washed, her pressure areas were never attended to and her room and bathroom were not cleaned. The nurse asked me to cook for Sophia as the processed hospital food made Sophia more ill. Sophia also had to deal with all the nurses constantly going into her room and talking to her.
SOPHIA & M.E. HER STORY (sophiaandme.org.uk)
 
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"The extensive post mortem showed up no cause of death. We requested an independent neuropathologist to research Sophia's spine. The findings confirmed that it contained massive infection. At the inquest the Coroner confirmed that "She died as a result of acute renal failure arising from the effects of chronic fatigue syndrome (CFS)"/ M.E."

That isn't really possible to interpret. There is no indication what sort of infection there might have been. Massive infection of the spine doesn't make a lot of sense. The 'effects' of chronic fatigue syndrome include being unable to eat and drink unaided and infection consequent on starvation but not much else.

The situation sounds fairly close to that of Maeve B other than that starvation occurred in hospital.

The message I get from these cases is that the real problem is that patients are being routed to psychiatric care when there is no psychiatric care to be given. There is no tested psychiatric treatment for ME/CFS (or CFS) in this situation. If patients go into psychiatric units and are cared for and fed then at least they are likely to survive.
 
I think there may have been a bit of a layperson's misunderstanding here with "massive infection of the spine". The neuropathologist's actual report on the Sophia and ME site stated that there was a dorsal root ganglionitis. I don't want to speculate too much but reactivation of varicella zoster near the end of life might have resulted in this.
 
If patients go into psychiatric units and are cared for and fed then at least they are likely to survive.
But at what cost? New or additional memories of coercive or even abusive treatment, more than likely the imposition of unevidenced theories as though they were factual; perhaps a refusal to accommodate sensory or other problems due to the stimulus-challenge ideology, perhaps attempts to replace the ME/CFS diagnosis with one more amenable to the psychiatrists. If a pwME is admitted to an acute psychiatric ward that will be very distressing indeed no matter how mildly affected they are. Not to mention potential worsening of the ME or a possibly irremediable loss of trust between the pwME and their GP, hospital, or the medical profession in general for suggesting (or imposing) it.

We need a place outside the existing paradigm; a place where pwME will be cared for safely and compassionately.
 
We need a place outside the existing paradigm; a place where pwME will be cared for safely and compassionately.

We probably need more than anything a humane place where people with chronic illness of any sort can be cared for on the understanding that they are not being subjected to bogus therapeutic paradigms.

My wife had experience of two psychiatric units. One was likely to make anyone worse whatever was wrong with them. The other was a quiet airy place, hidden away, with staff who were committed to being genuinely caring. It wasn't perfect but I found nothing to complain about.

Psychiatric patients would benefit from being in units with non-psychiatric patients, with both psychiatric and medical care on tap.

The point I am trying to make is that it sounds as if Sophia Mirza died from neglect, of a sort that could occur on any long stay ward. The question that is uppermost in my mind is what the psychiatrists thought they were doing to treat her. There is no known treatment other than general care, so what was going on?
 
Sophia also had to deal with all the nurses constantly going into her room and talking to her.

Unfortunately, psychiatric nurses are trained in the concept of behavioural activation which in practice results in loud, chaotic wards with nurses barging into patient rooms yapping very loudly about nonsense and encouraging the patient to chat and do things. For anyone with sensory issues, not just ME/CFS but also just introversion, neurodivergence etc., this is literal hell.
 
Golly, UK psych units sound quite different to NZ ones. Mental health nurses don't barge into people's rooms. Units are run much the same as medical wards but the patients are ambulatory. They do wake clients up to eat meals etc. otherwise they wouldn't get fed. But they can refuse a meal and go back to sleep if they want. Clients are encouraged to join some of the cultural and social activities but they are allowed to refuse and stay in the rooms or walk around the ward, socialising with the other clients, if they want, or sitting in the adjourning open space/garden. The many nurses I worked with were friendly but not over the top with it. The assigned nurse will probably have one conversation with a client during the day to do a mental state examination or offer support to the client whenever it is requested. Nurses are also obliged to keep observations on people with moderate to high risk of self harm etc. this does involve sighting the client depending on the level of obs indicated by the inpatient psychiatrist/registrar. Many clients are allowed leave to see to personal business or visit family.

Mental Health Units can be busy places with lots of different professional groups coming in to assess clients to prepare them for community care and family/friends can visit whenever they like during the day and at weekends. Therapy is not usually given on an inpatient unit as people are not well enough to have it. Wards are primarily for safety and containment, the administration of medication until levels of risks lower and they can be safely discharged into community care. Often nursing staff are busy trying to de-escalate patients who are have mania and acute psychosis.

There is usually a ward round throughout the day with the registrar and consultant doing mental status examinations, monitoring progress and adjusting medication, meeting with family and cultural advisors. It probably sounds strange but on the whole they can be quite friendly and quiet places.

However, sometimes they are unpredictable, where any raised voices usually sends staff swiftly walking (or running) to assess the situation and getting prepared to intervene with a variety of measures. Usually the most acutely unwell are nursed away from the main psychiatric ward in PICU (psychiatric intensive care unit) which has one to one nursing, a private high fenced courtyard, a lounge, a de-escalation area, three to four bedrooms and a couple of seclusion rooms with staff in a central pod doing continuous observations and control access into the area which is locked.

Medical Care is on tap. The admitting psychiatrist/psychiatric registrar takes a medical history and usually also has the medical history from the GP referral letter or the Electronic Health Record. The house surgeon is responsible for doing admitting physical examinations, full blood screening, ECG's and any additional tests needed. They deal with any medical concern that comes up for clients as they are under our care not their GP's. They inform the registrar/consultant of any concerning medical problems and discussions take place around the impact of the medical condition and any medication on the psychiatric presentation and the psychiatric medication on the medical condition. If the team are concerned with their limitation of knowledge on a particular illness they seek advice from the on-call medical consultant and often arrange for medical reviews on the ward. Out of hours, the psych registrar does this usually by triaging medical concerns with the nurses and prescribing treatment over the phone if appropriate. Often the psych reg is unable to attend as they are in an assessment in the community or in the police cells, and in this case an ambulance is called and the client is taken to A&E to be seen by the medical registrar.

However regardless of this, clients with ME are rarely admitted to a Mental Health Unit, most of our psychiatric care is done in the community, if the person is not a high risk of harm to self or others. We have small community mental health units that are unlocked, that are basically a house like any other house on a street, with peer and community mental health support workers looking after clients in a home like environment with a shared lounge and the clients often cook their meals with the staff. The community mental health nurse visits them daily and communicates with their community psychiatrist their progress, who advises on changes in medication and they see them every 3-5 days depending on their presentation.

Or clients are treated in their homes with one to one psychiatric nursing care and daily visits by the psychiatrist and the GP if required.
 
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We probably need more than anything a humane place where people with chronic illness of any sort can be cared for on the understanding that they are not being subjected to bogus therapeutic paradigms.

My wife had experience of two psychiatric units. One was likely to make anyone worse whatever was wrong with them. The other was a quiet airy place, hidden away, with staff who were committed to being genuinely caring. It wasn't perfect but I found nothing to complain about.

Psychiatric patients would benefit from being in units with non-psychiatric patients, with both psychiatric and medical care on tap.

The point I am trying to make is that it sounds as if Sophia Mirza died from neglect, of a sort that could occur on any long stay ward. The question that is uppermost in my mind is what the psychiatrists thought they were doing to treat her. There is no known treatment other than general care, so what was going on?
She was at home when she died. She had been unable to eat or drink.
When they broke down the door with the police to section her two years earlier, she was released after only a few weeks? on a ward, thanks to a tribunal or some kind. Obviously after that experience she crashed and never recovered.

http://www.sophiaandme.org.uk/sophia & m.e. her story.html
 
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Mirza case is quite similar to Maeve in that she developed intolerance to eating and drinking and died as a result. The hospital made her worse (psychiatric treatment, no medical feeding support) and she was sectioned under the false assumption that her mother was making her worse due to false illness beliefs by the NHS psychosomatic ideology.

The Wikipedia page links to a New Scientist article which confirms the dehydration caused the kidney failure. Why would ME/CFS cause kidney failure per se? So, this is another ME/CFS death directly caused by NHS psychosomatic/functional disorder ideology.

In July 2003 Mirza was forceably removed from her home and sectioned for two weeks by her doctors, who had come to believe her condition was psychosomatic, an action which her mother and sister said severely worsened her condition. Her mother and sister stated that Mirza's physical symptoms were treated as a mental condition rather than a physical illness, and her caregiver mother was accused of 'enabling' her.[2][3]

Death
For two years following her sectioning, Mirza's health deteriorated. By September 2005 she took a significant turn for the worse, developing intolerance to most of the food she consumed, ear infection and severe pain, and was only able to consume a small amount of water. Mirza died on 25 November 2005. Initial autopsy results were inconclusive for her cause of death, but a second autopsy and the results of an inquest released on 13 June 2006 determined the cause of death to be "acute anueric kidney failure due to dehydration caused by CFS".[1] Though initially reported by New Scientist as the first death worldwide ascribed to CFS, the magazine later acknowledged that other deaths had been directly attributed to CFS in the United Statesand Australia.[1] Fatalities have been attributed to CFS or ME since at least 1956.[4]

https://en.wikipedia.org/wiki/Sophia_Mirza
 
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Unfortunately, psychiatric nurses are trained in the concept of behavioural activation which in practice results in loud, chaotic wards with nurses barging into patient rooms yapping very loudly about nonsense and encouraging the patient to chat and do things.

I think that is a dodgy generalisation, even if there are some psychiatric nurses like that. In the two units my wife was admitted to none were like that. In the first the nurses seemed just to ignore the patients. In the second they were attentive and helpful. One particular nurse acted with complete understanding and sympathy, despite the fact that my wife was paranoid and irrational.

My experience with other health care episodes, including my brother in law's stroke, is that medical nurses are far worse.
 
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The Wikipedia page links to a New Scientist article which confirms the dehydration caused the kidney failure. Why would ME/CFS cause kidney failure per se? So, this is another ME/CFS death directly caused by NHS psychosomatic/functional disorder ideology.

Thanks for the link. So, yes, the two cases seem very similar. Death was in essence due to neglect in the sense that feeding support should have been provided and was not. This would have been justified on the basis of a functional disoder ideology that says that people with ME/CFS have neither intestinal failure nor a bona fide psychiatric reason for not eating so should be treated with (non-existent) psychotherapy rather than food and water.

I think it is unfortunate that these deaths are being used as examples of 'deaths due to CFS (or ME)'. The deaths are due to failure of care. Suggesting that they are due to ME/CFS justifies the idea that there is no point in giving care because the person will die of 'the disease' anyway. Whitney Dafoe proves that they don't.
 
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