Shropshire Star Reader's Letter: More cash and understanding needed to help ME sufferers

[Andy]

There is lots of information on the web. If you know someone with ME listen to them and believe what they say – they are not lazy – they want to be up and about but genuinely can’t get out of bed.

This was brought home to me on Saturday by a local man. He had a daughter with ME and he felt she was malingering and should pull herself together.

His wife was supporting her daughter but this had led to a rift and he said divorce was likely. He came to talk to us because someone told him to find out more about his daughter’s illness.

https://www.shropshirestar.com/news...nd-understanding-needed-to-help-me-sufferers/

 

[Cinders66]

I'm glad they're focusing on the research money in the media
Watching the royal wedding today I was struck by how the brits like to put on an impressive display to the world - splendid architecture, costly couture, the crowds, celebrating love, youth and beauty - the presenter said no one does a grand wedding quite like us

Then I thought of people like me in dark rooms, who can't even tolerate our hair being washed or bedding changed, who don't participate in any of our yearly festivals or family occasions, some even dying in this state and are being told that in our almost squalor £2.33 per person is all we are worth or deserving of. I see the MRC move from funding millions in CFS bps research then a bit more into FND research and that's it, with rubbish excuses. I wonder why for a decades there's not been uk protests at our research funding levels and I see millions Missing in uk still to really drive in on thIs with mass support and a loud voice. I hope very soon that we can and we can get the substantial funding input we do actually deserve so I don't feel left abandoned and mystified at supposedly living in a great, wealthy, high achieving country on the world stage that at home is content letting our young(ish) lives just rot away in rubbish circumstances.