After some ppl asked me about some meds i tried, i thought i try to make a short summary. Maybe its helpful for someone or it sparks some conversation about them. Things i tried and didn’t work: LDN 2,5mg 2 months - nothing Plasma exchange 7 times in 10 days - nothing rituximab 500mg day 1/day14 loading dose, refresh after 3 months - nothing high dose prednisolone for 4 months - a truck load of side effect, one of the worst decisions i made, did nothing good only bad MTX - made me much worse rapamune 4mg loading dose followed by 2mg for about a month - nothing betablockers (selective and unselective), astonin, mestinon and so on - nothing chelate therapy for heavy metals - nothing things that worked for me: benzodiazepine/lorazepam low dose, 0,5mg during crash, helps a lot to ease them Phenytoin - best one yet, would be interested if other ppl ever tried it. Could be a big winner tbh. Things that worked for a friend: Gabapentin 300mg 3 times a day Pretty sure i missed a lot of things i tried during the 6 years i’m sick now, will add them if they come to my mind.