1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Tom Kindlon, Mar 22, 2018.

Tags:
Page 14 of 14
  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    Tom Kindlon, Jul 6, 2018
    #261
    Starlight, Inara, MeSci and 8 others like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    52,229
    Location:
    UK
    Avery interesting read. Thanks to the person who wrote of their experience of PACE. Lots of food for thought.
     
    Trish, Jul 6, 2018
    #262
    MEMarge, Starlight, Inara and 6 others like this.
  3. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    Tom Kindlon, Jul 8, 2018
    #263
    MEMarge, rvallee, Mithriel and 12 others like this.
  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    Tom Kindlon, Jul 16, 2018
    #264
    NelliePledge, Simon M, rvallee and 7 others like this.
  5. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
    Response from Sharpe, Goldsmith and Chalder to Wilshire et al. paper
    S4ME thread there.
     
    Cheshire, Mar 15, 2019
    #265
    Simon M, ME/CFS Skeptic, Dolphin and 8 others like this.
  6. Andy

    Andy Committee Member

    Messages:
    21,922
    Location:
    Hampshire, UK
    Trial By Error: The 2018 PACE Reanalysis and the SMC’s Expert Appraisals
    http://www.virology.ws/2020/01/13/t...ce-reanalysis-and-the-smcs-expert-appraisals/
     
    Andy, Jan 13, 2020
    #266
    EzzieD, alktipping, MEMarge and 10 others like this.
  7. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,666
    It sometimes feels that what at the time felt like dramatic steps forward, in retrospect overall progress is very painfully slow.
     
    Peter Trewhitt, Jan 13, 2020
    #267
    alktipping, MEMarge, NelliePledge and 9 others like this.
  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    Tom Kindlon, Jan 13, 2020
    #268
    MeSci, Peter Trewhitt, Hutan and 6 others like this.
  9. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,274
    Location:
    Norway
    Kalliope, Jan 13, 2020
    #269
    MeSci, Peter Trewhitt, Simbindi and 10 others like this.
  10. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    Tom Kindlon, Mar 22, 2020
    #270
    janice, Woolie, mango and 15 others like this.
  11. Sean

    Sean Moderator Staff Member

    Messages:
    7,164
    Location:
    Australia
    When the history of this saga is written there will be two eras: Before Alem's FOI win, and after it.

    That was the turning point where it became untenable to deny the fatal problems with PACE and the CBT/GET model.
     
    Sean, Mar 22, 2020
    #271
    janice, Woolie, mango and 15 others like this.
  12. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,857
    Location:
    Aotearoa New Zealand
    and untenable to continue to claim that the only people opposing the BPS paradigm were a handful of irrational and violent patients.

    (Not to ignore the many things that were done by many before and after to change how PACE is viewed, but it does feel as though the FOI win was the watershed moment.)
     
    Hutan, Mar 22, 2020
    #272
    janice, mango, alktipping and 13 others like this.
  13. Sean

    Sean Moderator Staff Member

    Messages:
    7,164
    Location:
    Australia
    Yes, there have been a bunch of other very important factors, like the P2P and IOM reports.

    But Alem's FOI result, and its role in taking down PACE, was absolutely critical in starting the process of reining in the UK branch of the profession, which is the epicentre of this catastrophe.
     
    Last edited: Apr 21, 2020
    Sean, Mar 22, 2020
    #273
    janice, Woolie, mango and 13 others like this.
  14. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    I think Alem's result has greater implications - that citizens, or citizen scientists are worth listening too and have valuable contributions to make.

    Of course @Tom Kindlon & our much missed Bob have made great and undeniable contributions, but I see Alem's FOI as the thin end of the wedge.

    We need to keep hammering that home.
     
    Invisible Woman, Mar 22, 2020
    #274
    janice, Woolie, mango and 11 others like this.
Page 14 of 14

Share This Page