Before Christmas, I was surprised to receive a letter from our healthcare service advising that I have been referred to the above genetic clinic. I hadn't seen the referring internal medicine specialist for 1 1/2 years -- the length of the wait list period, I now know. I questioned the patient care coordinator, and was advised they will be evaluating me for suspected Ehlers-Danlos Syndrome. Prior to the appointment, I was required to complete a detailed questionnaire. My dilemma -- should I, or shouldn't I, open the ME/CFS can of worms? I did, especially based on my awareness of the ME/POTS/MCAD/EDS cluster. I already have three of the four diagnosis. My approach with medical appointments has always been to educate physicians, most of whom, I've learned, are still not receiving information about ME in their training. With that in mind, I'd appreciate receiving links to relevant research reports from the forum "science experts" to help me prepare for the consultation. I'm particularly interested in those that link at least ME and EDS, and possibly POTS and MCAD as well. Thanks. Edited to make it clear (with bolding) that I did divulge all medical conditions I have been diagnosed with, including ME.