Open Qualitative study in Norway recruiting participants

Tjenesten og MEg was one of the four research projects who got funded via the Research Council of Norway's project BehovME, where users of research were invited to give suggestions for what kind of research projects the council should prioritise.

Sintef and Fafo are cooperating on this research project where they will study the needs of ME patients and their families, as well as their usage of and experience with health care services.

They are now recruiting participants for a qualitative study. People in Norway who are interested to take part, can fill out this survey.

 

I completed the questionnaire this morning

I’m very excited about this study, we desperately need to map out the challenges faced by PwME in accessing health and social services, and everything I’ve seen so far makes me optimistic that the people behind this study are doing a very thorough job.

 

This is one of the studies I'm really looking forward to.

Sintef have done exellent work in this field before, with two earlier evaluations. It's not about treatments or finding the cause, but in the current clima in Norway it will still be an invaluable study to document by such a reliable and high thought of insitution how the lived experience of ME-patients is - and access to the health services.

They did a meeting at the planning stage of the project, that also was streamed, invititing ME-patients and their relatives to give them input. It was such a strong meeting, and very respectful, thoughtfull reserachers open to listening and take on board what was said.