Portugal: 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, 3rd & 4th April, 2024

B

Braganca

Senior Member (Voting Rights)
https://conferencia-emsfc-pos-covid.pt/

The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID aims to raise awareness, clarify misconceptions, promote understanding, and stimulate discussion among healthcare professionals, investigators, policymakers, patients, and community representatives on the clinical manifestations, management, therapeutic options, and health challenges related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID.

The incidence of ME/CFS continues to rise globally, in the aftermath of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections and Long COVID, further underscoring the need for informed diagnosis and treatment. Emerging evidence underscores many shared underlying biological abnormalities and symptoms reported in both illnesses, documented by multiple laboratories. This underscores the importance of sustained medical education and regular updates on research, diagnostic, and treatment guidelines.

The program will feature state-of-the-art lectures, and interactive sessions designed to address the educational needs of Portuguese healthcare professionals and health system capacity. It offers dedicated time for discussions to enhance knowledge exchange and reinforce the implementation of guidelines and recommendations.

The conference will take place on April 3 and 4, 2024, in Lisbon, at the premises of FLAD – Luso-American Development Foundation. You can attend in person (places are limited) or participate online via streaming.
 
I lived in Portugal 6 years ago, and back then there was almost no awareness of ME. It’s amazing to see this happen there. One of my doctors there who I saw for another reason apart from ME, is listed on the advisory committee. He’s pretty high profile and well known in Portugal, very vocal on medical issues in media, so this to me says that Portugal is taking ME seriously. I think long Covid is the catalyst for this change.
https://conferencia-emsfc-pos-covid.pt/committees/#national
https://conferencia-emsfc-pos-covid.pt/committees/#national
 
INteresting slide from video 2. Via an American researcher called Singh who works in concert with David Systrom. They made two subgroups out of their long covid patients: those who delivered oxygen well and those who didn't. They were able to find the ones who did well had some compensatory proteins expressed that improved mitochondiral function.

Screenshot 2024-04-05 at 1.11.56 pm.png
 
Another interesting slide from the same talk, 1h24 mark.
Screenshot 2024-04-05 at 1.21.11 pm.png

Seems to show that a rise in succinate during exercise correlates with mild mecfs.

germain Hanson et al 2022 found that patient succinate levels rose less than controls, on average. However they were equivalent before exercise.


Screenshot 2024-04-05 at 1.23.13 pm.png

Succinate is just upstream of fumarate in the tca cycle. levels of fumarate tended to rise slightly in patients after exercise. it's a clue of some kind!
 
ME Research UK

Last week, ME Research UK attended, virtually, the “1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID”. The 2-day conference, held in Portugal, included talks from established ME/CFS researchers (several of whom have previously received funding from ME Research UK) and early career researchers. The presentations and discussions were informative and covered a wide range of topics.

Read our general overview of the key themes of the conference: https://tinyurl.com/5n9asbew
This will be followed up by more detailed insights about the conference topics.

https://twitter.com/user/status/1778045271743623666
Click to expand...
 
ME Research UK


The “1st International Conference on Clinical and Scientific Advances
in ME/CFS and Long COVID” was held recently and ME Research UK
attended remotely. The key themes of the conference have been
summarised:

1. “Disease heterogeneity”, “challenges in determining prevalence”,
and “biological abnormalities”, are explored – including how
heterogeneity plays a central role in complicating research into
ME/CFS, and into long COVID.

2. The remaining themes “history of ME/CFS” and the “need for
comprehensive clinical assessment” will follow soon.

Read part 1 here: https://bit.ly/4aHsIgz

Read a brief overview of the conference here: https://bit.ly/44OlBkU

https://twitter.com/user/status/1795748201036906540
Click to expand...
 
ME Research UK

Following on from yesterday's posting, this is part 2 of highlights
from the '1st International Conference on Clinical and Scientific
Advances in ME/CFS and Long COVID, Lisbon'. Topics include:

- History of ME/CFS

- Clinical assessment of ME/CFS and long COVID

- Biological abnormalities (immune and metabolic) in ME/CFS and long COVID

Read part 2: https://tinyurl.com/ybhkny76

Read a brief overview of the conference: https://bit.ly/44OlBkU

https://twitter.com/user/status/1796107279747416552
Click to expand...
 
Paywalled presentation or report from this conference, Post-infective myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-COVID as two puzzling faces of the same medal. Recent insights.

No abstract available, this 'section snippet' is
"Background

How much is truly shared in terms of pathogenesis, symptomatology, and disease progression between the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-COVID, and why have these two very complex conditions recently been grouped under the same umbrella terms?

The 1st International Conference on Clinical and Scientific Advances of ME/CFS/long COVID”, held in Portugal, on April 3rd and 4th 2024 [1], addressed, for the first time, this concern, shedding light onto two highly..."
 
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