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PINEAPPLE FUND INCREASES DONATION TO OMF to $5 MILLION

Discussion in 'General ME/CFS News' started by Daisymay, Feb 2, 2018.

  1. Daisymay

    Daisymay Senior Member (Voting Rights)

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    https://www.omf.ngo/2018/02/02/pineapple-fund/

    PINEAPPLE FUND INCREASES DONATION TO $5 MILLION

    Two weeks ago, on January 14, 2018, OMF received a $1 million donation from the Pineapple Fund to “accelerate much-needed research for ME/CFS and related chronic complex diseases.”

    The Pineapple Fund was so moved by the outpouring of appreciation from our US and international OMF family, that today they have increased their commitment with an additional $4 million donation through bitcoin to bring their total support to $5 million! Linda Tannenbaum, OMF CEO/President, believes the additional donation was made in response to the overwhelming gratitude expressed by the patient community on Reddit and other social media.

    OMF has received thousands of likes and comments on Facebook, Twitter and Reddit. Patients and family members have been moved to tears by this exciting news. Here are two examples of the heartfelt gratitude:

    “Thank you for giving hope to people suffering with this disease. My son has had it for about 10 years, most of that time it was not recognized as an illness, let alone a serious one. A life full of exhaustion and pain may come to an end soon for him and other sufferers.” Ann W.

    “Thank you, Pineapple Fund, for seeing beyond the cloak of invisibility laid upon this horrid illness and recognizing the desperate need. The hope this provides is palpable.” Liane B.

    This additional funding will drive research already underway in several key areas: creating a diagnostic test for ME/CFS; scaling up patient data analysis; accelerating the development of new technology to identify treatment options; and ultimately, research towards a cure.

    Expressing support for the work of OMF, “Pine” from the Pineapple Fund said in a recent message: “I had known about ME/CFS for a while, and I know it is a serious condition without much in the way of treatment or research. I’ve recently received letters of support from esteemed academics in the field strongly supporting OMF, and that helped me make the decision!”

    We are tremendously grateful to the Pineapple Fund for igniting OMF’s research and delivering hope!
     
  2. Adrian

    Adrian Administrator Staff Member

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    Lets hope they can cash it in quickly if its in bitcoin as the value is very volatile.

    But his is great news and demonstrates the value of thanking people who do good work or help the ME community. We are often quick to criticism the bad actions and I think this demonstrates that we can also be quick in thanking people doing good things,
     
  3. Cheesus

    Cheesus Established Member (Voting Rights)

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    The payment provider that the OMF uses, BitPay, converts bitcoin to USD on receipt.
     
  4. Alvin

    Alvin Senior Member (Voting Rights)

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    This is incredible!
     
  5. strategist

    strategist Senior Member (Voting Rights)

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    I agree that this additional donation happened because patients were so grateful on various social media. And also because we really need some extra help.
     
  6. MErmaid

    MErmaid Guest

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    It’s so cool to see the OMF logo on the Pineapple Fund site, under the list of charities supported!

    7B7C4977-7DCB-4163-9517-DCBFD5658CE4.jpeg

    https://pineapplefund.org/
     
    Louie41, ballard, RuthT and 28 others like this.
  7. MErmaid

    MErmaid Guest

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    This also demonstrates the power of patient (and caregiver) activism.
     
  8. Sasha

    Sasha Senior Member (Voting Rights)

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    Holy ****! This is AMAZING.

    So grateful to the Pineapple Fund guy.
     
  9. Joel

    Joel Senior Member (Voting Rights)

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    That is a seriously decent amount of money for research right there, very pleased indeed.
     
  10. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    So grateful. Thank you Pineapple Fund.
     
  11. guest001

    guest001 Guest

    That is good news. It seems the double pronged pull of patient thanks and serious academic interest has made the difference. We're not short of the former and now we're seeing the latter paying dividends (quite literally).
     
  12. strategist

    strategist Senior Member (Voting Rights)

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    Next steps: blood test, major findings, a surge of interest in the illness?
     
  13. Justy

    Justy Senior Member (Voting Rights)

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    Oh wow - amazing news!
     
  14. Sasha

    Sasha Senior Member (Voting Rights)

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    Is there a link to somewhere where we can go and thank him? I don't mean that in an, 'If we thank him, maybe he'll give us another $10m,' sense but just because he's just given us five million bucks and we should be thanking him...
     
  15. Cheesus

    Cheesus Established Member (Voting Rights)

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    If you write a message on my Reddit thread and tag /u/pineapplefund he will see it:

     
    Louie41, Sly Saint, Sing and 20 others like this.
  16. MsUnderstood

    MsUnderstood Senior Member (Voting Rights)

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    Not only is the donation worth celebrating. News coverage, such as that at the link below, should also help the cause.

    From Reuters, a high-profile source:

    https://www.reuters.com/article/uk-...-million-to-medicine-foundation-idUSKBN1FM2G4

    "This significant donation will help OMF accelerate and expand current research into ME (myalgic encephalomyelitis), CFS (chronic fatigue syndrome) and other chronic complex diseases and to keep fighting for a better future for patients,” said Linda Tannenbaum, founder and president of OMF.

    Tannenbaum said OMF had conversations back and forth with the donor, but she did not know his or her identity.
     
  17. Webdog

    Webdog Senior Member (Voting Rights)

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    Will be very interested to see what OMF studies get started this year. I look forward to participating in as many as I can. :)

    Thank you Pineapple Fund!
     
  18. JemPD

    JemPD Senior Member (Voting Rights)

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    What wonderful wonderful news :)

    how does one go about saying thank you to them? does anyone know? I'm not on twitter or reddit.
     
  19. Binkie4

    Binkie4 Senior Member (Voting Rights)

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  20. Joh

    Joh Senior Member (Voting Rights)

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    There's also an email address on the Pineapple Fund website. :)
     

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