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Pediatric-Onset Postural Orthostatic Tachycardia Syndrome in a Single Tertiary Care Center, 2020, Staples et al

Discussion in 'Cardiovascular and Respiratory' started by Andy, May 2, 2020.

  1. Andy

    Andy Committee Member & Outreach

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    Hampshire, UK
    Paywall, https://journals.sagepub.com/doi/10.1177/0883073820916260
    Sci hub, https://sci-hub.tw/10.1177/0883073820916260
    Peter Trewhitt and Caesar like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

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    That 70% seems very high, likely includes BS experiments with questionnaires. Though we know definitions of "improvement" vary wildly in researchers' minds. The despair that I see in the POTS community definitely do not reflect such high rates of successful improvements. Or then again, maybe they are simply blocked by health care not offering anything. I mentioned it once to my GP and she had no idea what it is and options seem as plentiful as they are for ME.

    Or maybe POTS is a bit like ME and has better prognosis in teens and kids?
    Peter Trewhitt and alktipping like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    I've been told that the rate of natural improvement for PoTS can be really high amongst young people, so a high rate of improvement might not show much about the value of the treatments.

    Maybe when young people's bodies are changing so fast, that can lead to short-term problems as different parts need to adjust to all the growth?
    MEMarge, alktipping and rvallee like this.

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