I've become involved with a regional patient support group. A very good nurse was employed about 6 months ago whose part-time role includes visiting members to give them advice and help them access services. Currently all our systems are very rudimentary and predominantly paper based, with some unlinked spreadsheets. We have a need to keep better records and protect members' privacy. Very fortunately, we've just located a person with ME with talents in customer relation management among other things who may be able to put some time to this. And so developing a simple customer relation management system is a real possibility. It might even allow us, with the right ethical/privacy safeguards in place, to provide data for investigations into the illness course of people diagnosed with ME/CFS. Have any of you already gone down the same path of attempting to develop systems for member records? What things worked and what things were problems?