patient.info website (updated Nov 2021)

the pages for professionals is pretty much in line with the new guidelines.

Code:

https://patient.info/doctor/myalgic-encephalomyelitischronic-fatigue-syndrome-mecfs-pro

Chronic Fatigue Syndrome (Myalgic encephalomyelitis) | Patient

the patient pages are rather muddled.

Code:

https://patient.info/signs-symptoms/tiredness-fatigue/chronic-fatigue-syndrome-myalgic-encephalomyelitis

Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) | Patient

 

I haven’t seen such a heavy focus on endocrine aspects of aetiology (two out of six bullets) in something like that before. The intersection of ME and adrenal gland behaviour is of huge interest to me, but I thought it was just one of dozens of possibly implicated systems.

Colin Tidy, the author, references his aetiology section to this:

https://pubmed.ncbi.nlm.nih.gov/31394725/
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Comprehensive Review

This document goes into much more depth regarding cortisol than catecholamines (Tidy gives the two a bullet point each) but the discussion is disappointing, as the authors are agnostic over whether cortisol is causal or secondary (which is fair enough) but relate it exclusively to “stress” and psychological factors, which is irksome to anyone in that very small group with both ME and a neuroendocrine tumour diagnosis.

 

no change.
Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) | Patient

does not meet these requirements

surely if they could get it right in the pages for professionals they could do the same on the patient pages?