1. Guest, the 'News in Brief' for the week beginning 12th October 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

PACE trial manuals no longer accessible

Discussion in 'PsychoSocial ME/CFS Research' started by Robert 1973, May 19, 2018.

  1. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

    Messages:
    595
    Likes Received:
    7,656
    Location:
    UK
    Joh, EzzieD, adambeyoncelowe and 9 others like this.
  2. Andy

    Andy Committee Member & Outreach

    Messages:
    10,715
    Likes Received:
    77,420
    Location:
    Hampshire, UK
    Joh, inox, EzzieD and 14 others like this.
  3. Woolie

    Woolie Committee member

    Messages:
    2,472
    Likes Received:
    15,880
    Here is the apt participant manual ( I don't seem to have a copy of the therapist's manual for APT):
     

    Attached Files:

    Joh, inox, Robert 1973 and 3 others like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,737
    Likes Received:
    30,541
    Oops - I thought they'd all been uploaded to MEpedia. After the one woolie posted, looks like these are the only two missing now.
     

    Attached Files:

    Last edited: May 20, 2018
    Joh, inox, Robert 1973 and 3 others like this.
  5. Sbag

    Sbag Senior Member (Voting Rights)

    Messages:
    277
    Likes Received:
    2,028
    I think i downloaded them all a few weeks ago. Am away at the mo though so won't be able to check until next week.
     
  6. BruceInOz

    BruceInOz Senior Member (Voting Rights)

    Messages:
    392
    Likes Received:
    2,669
    Location:
    Tasmania
    Here's a complete set so anyone getting to here doesn't need to go further. These were downloaded in April 2011.
     

    Attached Files:

    MEMarge, TiredSam, AndyPandy and 26 others like this.
  7. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    907
    Likes Received:
    7,939
    Location:
    Sally Burch - Northern Ireland
    Thank you @BruceInOz -very useful. Seems Prof Sharpe wasn't aware they were now behind a login. He says he's going to ask QMUL.

     
  8. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,093
    Likes Received:
    39,993
    This sounds like a circular justification to me, because surely they used a definition most likely to show more favourable results with subjective outcomes. Or am I missing something?
     
  9. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    907
    Likes Received:
    7,939
    Location:
    Sally Burch - Northern Ireland
    Apparently now back online. I haven't checked yet.

     
  10. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,093
    Likes Received:
    39,993
    Last edited: May 21, 2018
  11. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    907
    Likes Received:
    7,939
    Location:
    Sally Burch - Northern Ireland
  12. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,093
    Likes Received:
    39,993
    Excellent.
     
    Indigophoton and Keela Too like this.
  13. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,737
    Likes Received:
    30,541
    Joh, Allele and Barry like this.
  14. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,093
    Likes Received:
    39,993
    True.
     
    Esther12 likes this.
  15. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    907
    Likes Received:
    7,939
    Location:
    Sally Burch - Northern Ireland
    Oh! So only some of the documents are still available. Meh.
    Too late to think now, I'll look again tomorrow.

    Did they ONLY put up the therapist manuals for each of the four trial arms? But not the other documents? It would seem daft not to have all available. Gah.
     
    arewenearlythereyet and Esther12 like this.
  16. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,737
    Likes Received:
    30,541
    It looks like the therapist and participant guides are up, but those couple of additional things are not.
     
    Barry likes this.

Share This Page