From the Stakeholders meeting of NICE:- So, my experience from 2017. I asked my GP to refer me for a tilt table test as I have had varying symptoms when standing, climbing stairs, any uphill walk (not exactly hills, you understand, but we do live on a slope and I do walk a slow dog and me 'around the block' 3/4 times a week). The symptoms have varied from almost fainting to needing to sit to rising temperature, racing heart, wobbling. I saw the Consultant, had the tilt table and a follow up review. Despite the letter saying I "was well on leaving", my 86 yo mother had to escort me out to father's car. I had been unable to speak to her for 5-10 mins when out from the tilt table test & still could not speak properly/word find for at least an hour afterwards. I had many symptoms whilst on the table (see letter in file) and yet Consultant found 'dysautonomia is not the cause of her symptoms'. Partner and Dr were both surprised at my reaction to the news (cried) when I had had the good news that my heart is fit and well . Another thing to put on my 'to do' list - persevere with investigations.