NY Times: Opinion, "In My Chronic Illness, I Found a Deeper Meaning"

In my opinion the article is better than the title suggests.

https://www.nytimes.com/2018/01/10/opinion/in-my-chronic-illness-i-found-a-deeper-meaning.html

 

I found that article quite beautiful, I'm going to drop a link in the peace and acceptance thread.

 

I agree it's a very good article, highlighting the problems with diagnosis, prejudice and living with serious chronic conditions.

 

I'm not sure that there is any established metric to measure that so I shouldn't necessarily take that as established fact.

 

The similarity between playground bullying and how ME/CFS patients are treated has always struck me. The bully (in our case BPSers) strikes to suit their own ends and others follow because they don't want to become the next target.

People look at us and, I think, some small part of them is afraid. Afraid that they could one day be on the outside, like we are. The readiness to believe the narrative that has been spun is because they don't want to be like us. Surely if they are strong people with a good work ethic and backbone it won't, can't, happen to them. Therefore we must be weak, workshy, misguided.

We embody their fears.

 

I liked the picture at the top - it illustrates how poorly we understand what a self is. And maybe is not too far off the truth.

I was also impressed by the text. Any doctor who thinks they know what is going on here is a charlatan. My colleagues need to be humble enough to admit they have no idea.

It reminds me of ringing up British Telecom to complain that my Broadband did not work. They checked it out with their checking out system. 'It's all fine sir, working perfectly'. Er, no it isn't, there is no signal. 'Well I don't know why that is sir it is all fine, I just checked it out. There is nothing wrong with your line and after the point where the line enters your house it is no longer our responsibility.' But after it enters my house it attaches to one of your Broadband hubs, so that is your responsibility isn't it?. 'Oh, that is not my department, sir, we cannot actually test the hub, all we can say is that the line is fine.' And so on until I changed providers.

'Oh it must be lupus - not my department.' 'Oh no, it's not lupus it must be hysteria, not my department.' I can hear their voices ringing in my head.