Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

Discussion in 'Recruitment into current ME/CFS research studies' started by John Mac, Apr 17, 2025.

  1. Yann04

    Yann04 Senior Member (Voting Rights)

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    And if there wasn’t massive social and institutional and infrastructural inertia behind the car being used for transport, it would probably be far more regulated than now.

    Kind of like alcohol (alcohol is more dangerous than something like cannabis in practically every way).

    Both alcohol and cars lead to a massive amount of preventable deaths, but they’re so engrained in our cultures its political suicide to try and do something big about it.

    https://en.m.wikipedia.org/wiki/Path_dependence
     
    Last edited: Apr 27, 2025 at 5:48 PM
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  2. V.R.T.

    V.R.T. Senior Member (Voting Rights)

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    Yes I would also take this risk in a heartbeat but would have to think very hard if I was mild and things continue to pan out as JE has been talking about with the science.
     
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  3. Kitty

    Kitty Senior Member (Voting Rights)

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    Yeah, I agree. Also, temporary immune suppression—for a number of weeks—is one thing, but even as a moderately ill person I wouldn't choose a drug that caused significant immune suppression in the long term. Not for ME/CFS at least.

    The risk/benefit calculation is very different for people who're severely ill, of course.
     
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  4. Tia

    Tia Senior Member (Voting Rights)

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    I very much agree. I have a lot of respect for Fluge and Mella. Not so much for those selling the drug as a treatment before the research is there for people to be able to make in informed choice.

    Have I missed something here? If so, can someone point me in the direction of relevant thread? ty
     
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  5. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Nothing specific but I am optimistic that enough good people are focused on the problem now that we will get some answers about mechanisms reasonably soon.
     
  6. Tia

    Tia Senior Member (Voting Rights)

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    Thank you, that's good to hear!
     
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