Sly Saint
Senior Member (Voting Rights)
PW:
“It is also remarkable that the committee use the symptom of post-exertional fatigue as a reason for not providing GET"
surely they (NICE) used PEM ie post exertional malaise not fatigue?
again nervous about the use of 'cause'; echos of the BACME statement.
Does this also extend to the CBT that 'encourages' patients to incrementally increase activity?
'pacing-up'?
eta:
from DTs blog
Time to retract the PACE trial.
“It is also remarkable that the committee use the symptom of post-exertional fatigue as a reason for not providing GET"
surely they (NICE) used PEM ie post exertional malaise not fatigue?
Do not offer people with ME/CFS:
any therapy based on physical activity or exercise as a treatment or cure for ME/CFS
generalised physical activity or exercise programmes – this includes programmes developed for healthy people or people with other illnesses
any programme based on fixed incremental increases in physical activity or exercise, for example graded exercise therapy structured activity or exercise programmes that are based on deconditioning as the cause of ME/CFS
again nervous about the use of 'cause'; echos of the BACME statement.
Does this also extend to the CBT that 'encourages' patients to incrementally increase activity?
'pacing-up'?
eta:
from DTs blog
hopefully the penny will finally drop for journalists.the Science Media Centre has rounded up some of the leading lights of the biopsychosocial ideological brigades to offer comment—Professor Sir Simon Wessely, Professor Michael Sharpe, Professor Trudie Chalder, Professor Alastair Miller and Professor Peter White
Time to retract the PACE trial.
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