NICE Guidance on Thyroid Disease - Final Guidance

Arnie Pye

Arnie Pye

Senior Member (Voting Rights)
I just saw this (public) thread on the Thyroid UK forum on HealthUnlocked.

https://healthunlocked.com/thyroiduk/posts/142088622/nice-guidance-on-thyroid-disease-final-guidance

There has been a Clinical Knowledge Summary on the subject of hypothyroidism on the NICE website for a long time, but there have never been any official guidelines on hypothyroidism before. Well now there are. And patients and charities involved in hypothyroidism have basically been told to piss off - everything they've said has been discounted, even though they were stakeholders in the creation of the guidelines. There will be no approval of T3 or NDT. It's Levo only, folks.

I don't know what has been said (if anything) about central hypothyroidism or resistance to thyroid hormone or any other sorts of hypothyroidism, because I haven't read the guidance yet, and to be honest it will be a while before I'm in the mood for reading cr*p.

Edit : Grammar
 
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It is frightening just how many swaths of medicine not merely come up short, but suck. This is not what we were taught in the 60's and 70's and 80's - although we did start to learn in the 80's that dark, unexpected things lurked despite earlier medical posturing.
 
Denying hypothyroidism sufferers the option of taking T3 or NDT is medically-authorised, doctor-approved torture.

And one of the reasons for allowing this kick in the teeth of thyroid patients (in respect of T3) is because of cost. T3 in the UK is more expensive than anywhere else in the world. And the reason it is more expensive here is because someone who ran a pharma company realised there was a loophole in the rules surrounding the sale of generic T3 and pushed the price up. The NHS was alerted to the profiteering by patients for years. But nothing was done. It reeks of corruption in the higher echelons of the Department of Health and the NHS. I think one of the men who ran the pharma company that raised the price of T3 by an enormous amount was given a knighthood a year or so ago.

I could buy 100 x 25mcg tablets of T3 in Turkey and it costs only a few euros - perhaps 3, I don't know for certain. Even in countries in the EU the price is a tiny fraction of the price here. In the UK 30 x 20mcg tablets of T3 costs about £205. It has come down in price from about £270.

If doctors who write the guidelines don't want to be found out about torturing (mostly) women then they have to make sure that T3 (and NDT) never becomes freely available as a treatment for hypothyroidism. Because then people will know what they did.

Edit : As you might be able to tell, I'm feeling very, very aggrieved and hard-done-by about this subject!
Edit 2 : Typo
 
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