NHS GP practice Camphill Scotland misinformation

R

RainbowCloud

Established Member (Voting Rights)
Hey everyone!

Just wanted to flag concern about an NHS GP practice called Camphill in Scotland, which has a huge array of ‘wellness’ resources on their website. Some are fine and I have no issue with them but others I find problematic and inappropriate.

In these resources they say that Fibro, IBS and CFS (they don’t call it ME or ME/CFS) are functional disorders and go into great detail spewing misinformation dressed as respectable scientific fact. For CFS they recommend a CBT technique called ‘STOPP’ as well as David Jameson’s ‘Persistent Burnout Theory of Chronic Fatigue Syndrome’ and DJ’s website as resources. There are others that irk me too. The link is here if you want to take a look.

Re: David Jameson
Art Vandelay said:
He's also apparently the chap known as 'ScienceWatcher' on Wikipedia. He ruthlessly edits the content on the ME/CFS page to favour his quack BPS views.
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(There’s loads more about this guy if you search him on s4me)

What’s best to do about this – should I let the ME Association know, or someone else, or is it better just to ignore it?

Thanks!
 
RainbowCloud said:
the NICE guideline hadn’t been adopted properly in Scotland yet so explains why they’re getting away with pushing gaslighting rubbish!
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Sadly, the fact that the NICE guideline was not formally adopted probably doesn't have much to do with ongoing nonsense. Things don't appear to be great in England.

From the FND resource:

Specific functional Syndromes and Symptoms

Specific approaches are described for different functional disorders and syndromes. The following resources have more information on this.

• Chronic Fatigue Syndrome

o Overview article with useful links to other organisations
https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome

o Persistent Burnout Theory of Chronic Fatigue Syndrome
http://dx.doi.org/10.4236/nm.2016.72008

o Useful guide to ME symptoms and management
http://www.remembercfs.org.uk/about-mecfs/

o A brief guide is also available on the Action for ME website at
https://www.actionforme.org.uk/uploads/supporting-outcomes-HCP-briefing-2018.pdf
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That link to the Action for ME website doesn't work anymore. It might be worth contacting Action for ME about the clinic and resource. At the very least, they might not want their name on this material. They might also note the lack of compliance with NICE Guidelines when they try to get that fixed.
 
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