think_that_it_might
Senior Member (Voting Rights)
Hey,
I live in the UK and have had ME for over 20 years now, spending much of that time claiming disability benefits. A few years ago I came into some money which meant I didn't have to jump thru the hoops of the process for a while, the stress of which I find very difficult, so I have been living off of that since then. However, that is now running short and it seems I will soon have to reapply for ESA, and possibly PIP.
I recently read a piece on PIP applications in a support group newsletter that stated that applicants find it very hard to get awards unless they have a support letter from a local NHS fatigue clinic. Is this true? I last had dealings with people from my local clinic over a decade ago (they were appalling) and have no intention of going back there, and my previous DLA applications have been supported with reports from my GP, who I saw regularly, and information that I'd had treatment which had failed in the past.
It feels like a very odd requirement, given that so few patients would have passed thru them recently enough for the clinic to have good knowledge of their condition: my understanding of how they function is that, if a patient doesn't require "treatment", then they are discharged back into primary care, and that treatment programmes, such as they are, don't last very long anyway. So, would it be a sensible idea to get myself referred to one of these places if I had no intention of doing CBT or GET again? Is this just a wheeze to make sure as few people with ME get benefits as possible?
I'm curious as to people's experience with these clinics, as to whether they ever just oversee patients without pushing them into treatment, and also whether the lack of their support has often been cited as a reason for turning down the claims of any UK forum members.
I live in the UK and have had ME for over 20 years now, spending much of that time claiming disability benefits. A few years ago I came into some money which meant I didn't have to jump thru the hoops of the process for a while, the stress of which I find very difficult, so I have been living off of that since then. However, that is now running short and it seems I will soon have to reapply for ESA, and possibly PIP.
I recently read a piece on PIP applications in a support group newsletter that stated that applicants find it very hard to get awards unless they have a support letter from a local NHS fatigue clinic. Is this true? I last had dealings with people from my local clinic over a decade ago (they were appalling) and have no intention of going back there, and my previous DLA applications have been supported with reports from my GP, who I saw regularly, and information that I'd had treatment which had failed in the past.
It feels like a very odd requirement, given that so few patients would have passed thru them recently enough for the clinic to have good knowledge of their condition: my understanding of how they function is that, if a patient doesn't require "treatment", then they are discharged back into primary care, and that treatment programmes, such as they are, don't last very long anyway. So, would it be a sensible idea to get myself referred to one of these places if I had no intention of doing CBT or GET again? Is this just a wheeze to make sure as few people with ME get benefits as possible?
I'm curious as to people's experience with these clinics, as to whether they ever just oversee patients without pushing them into treatment, and also whether the lack of their support has often been cited as a reason for turning down the claims of any UK forum members.