News from South America

Moved post
Fibromyalgia and CFS in the Brazilian Parliament


From: Dr. Marc-Alexander Fluks
Subject: ME/FM in Brazilian parliament



Source: Play Crazy Game (Brazil)
Date: March 28, 2022
URL:
https://playcrazygame.com/2022/03/2...yalgia-by-sus-this-wednesday-senado-noticias/
Ref: https://www.camara.leg.br/deputados/160575
https://www2.camara.leg.br/english
https://en.wikipedia.org/wiki/Chamber_of_Deputies_(Brazil)


Plenary evaluates offer of medicine for fibromyalgia by SUS
this Wednesday – Senado Noticias
-----------------------------------------------------------
The Senate Plenary deliberates this Wednesday (30), from 4 pm, on a bill
that determines the supply of medicines and treatment with a
nutritionist by the Unified Health System (SUS) to people with
fibromyalgia and chronic fatigue.

PL 3,525/2019, authored by federal deputy Erika Kokay (PT-DF), had a
favorable report from Senator Sergio Petecao (PSD-AC) in the Social
Affairs Committee (CAS) and by Senator Angelo Coronel (PSD-BA) in the
Committee on Economic Affairs (CAE).

Currently, people with fibromyalgia or chronic fatigue are entitled to
receive comprehensive care through the SUS (including multidisciplinary
treatment in the areas of medicine, psychology and physiotherapy) and
access to complementary exams and recognized therapies, including
physiotherapy and physical activity.

Fibromyalgia is a syndrome of unknown causes, characterized by
generalized, chronic muscle pain, which can last more than three months,
accompanied by sleep problems and tiredness. Chronic fatigue syndrome is
identified by intense tiredness with physical or mental activity, but
without improvement with rest, and can also cause headaches, throat,
muscle and joints, ganglia and difficulty concentrating.

 

Postponed, I think?

Project that guarantees the treatment of fibromyalgia in the SUS postponed — Senado Notícias

https://newsbeezer.com/brazileng/pr...myalgia-in-the-sus-postponed-senado-noticias/

 

"We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community."

"#MillionsMissing Aliança has a public facebook group for the moment. Join it! facebook.com/groups/5780817… We'll share them when they are on Twitter. Their priorities: 1. Raise awareness about #MECFS through (social) media and events. 2. Make the community of Portuguese-"

"speaking patients visible, with physical or virtual support groups. Cooperate with other organizations. 3. Promote medical education for healthcare providers; provide resources in Portuguese. 4. Call on public authorities to make clear commitments to #MECFS patients."

Quotes from Twitter thread from Millions Missing France