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News from South America

Discussion in 'Regional news' started by Dolphin, Mar 30, 2022.

  1. Dolphin

    Dolphin Senior Member (Voting Rights)

    Moved post
    Fibromyalgia and CFS in the Brazilian Parliament

    From: Dr. Marc-Alexander Fluks
    Subject: ME/FM in Brazilian parliament

    Source: Play Crazy Game (Brazil)
    Date: March 28, 2022
    Ref: https://www.camara.leg.br/deputados/160575

    Plenary evaluates offer of medicine for fibromyalgia by SUS
    this Wednesday – Senado Noticias
    The Senate Plenary deliberates this Wednesday (30), from 4 pm, on a bill
    that determines the supply of medicines and treatment with a
    nutritionist by the Unified Health System (SUS) to people with
    fibromyalgia and chronic fatigue.

    PL 3,525/2019, authored by federal deputy Erika Kokay (PT-DF), had a
    favorable report from Senator Sergio Petecao (PSD-AC) in the Social
    Affairs Committee (CAS) and by Senator Angelo Coronel (PSD-BA) in the
    Committee on Economic Affairs (CAE).

    Currently, people with fibromyalgia or chronic fatigue are entitled to
    receive comprehensive care through the SUS (including multidisciplinary
    treatment in the areas of medicine, psychology and physiotherapy) and
    access to complementary exams and recognized therapies, including
    physiotherapy and physical activity.

    Fibromyalgia is a syndrome of unknown causes, characterized by
    generalized, chronic muscle pain, which can last more than three months,
    accompanied by sleep problems and tiredness. Chronic fatigue syndrome is
    identified by intense tiredness with physical or mental activity, but
    without improvement with rest, and can also cause headaches, throat,
    muscle and joints, ganglia and difficulty concentrating.
    Last edited by a moderator: Mar 30, 2022
    nick2155, Starlight, Sean and 4 others like this.
  2. ahimsa

    ahimsa Senior Member (Voting Rights)

    Oregon, USA
    cfsandmore, Trish and Peter Trewhitt like this.
  3. Andy

    Andy Committee Member

    Hampshire, UK
    "We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community."

    "#MillionsMissing Aliança has a public facebook group for the moment. Join it! facebook.com/groups/5780817… We'll share them when they are on Twitter. Their priorities: 1. Raise awareness about #MECFS through (social) media and events. 2. Make the community of Portuguese-"

    "speaking patients visible, with physical or virtual support groups. Cooperate with other organizations. 3. Promote medical education for healthcare providers; provide resources in Portuguese. 4. Call on public authorities to make clear commitments to #MECFS patients."

    Quotes from Twitter thread from Millions Missing France
    Dolphin, Trish, Wyva and 1 other person like this.

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