News from PrecisionLife Ltd.

I signed up for the biomarker study. It looks like they have options for drug trials for POTS, migraine, and MCAS, but not ME/CFS as far as I can tell.

 

Are the trials and DNA study only for people in the US?

 

I'm not sure. For the drug trials it says must be physically able to travel to Metrodora Institute. I sent an email and will let you know if they respond.

 

The ISM & MCAS protocol:
https://clinicaltrials.gov/study/NCT04655118

 

This might be the POTS trial:
https://www.medifind.com/articles/clinical-trial/529149000

IgPro20 appears to be a kind of Immunoglobulin, with the alternative name Hizentra.

 

This might be the Dysport Migraine trial:
https://www.medstarhealth.org/blog/dysport-migraine-studies

Dysport is similar to Botox.

 

Ah, so I guess Metrodora is only one of many locations doing these drug trials. Lots of other countries for this one.

 

Yeah, it seems like all of the pharma run trials covers many locations. They probably need it to get enough participants.

 

They said:

 

Just seen a link to this from SolveME fb: Facebook

MELO Study — Metrodora Institute

It says the goal is:

I'm having a look through it to see if you can participate internationally - it says it involves a swab at home

but also it is that question of security re data, including if it is sending a swab etc and what we might need to think about. It answers this in the FAQs as:

There is also a question on the fb comments about whether it is sensible that they are using people self-identifying as diagnosed with ME/CFS or LC

My brain isn't that up for thinking these ones through - could be an interesting study to discuss?