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News from New Zealand and the Pacific Islands

Discussion in 'General ME/CFS News' started by Hutan, May 19, 2018.

  1. Ravn

    Ravn Senior Member (Voting Rights)

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    This post concerns those of you living in the Southern District Health Board area.

    The SDHB is developing a Disability Strategy and are doing an online survey during February. It's a short survey and a good opportunity to increase awareness of the needs of invisible disabilities like ours within the local health system. Anonymously if you so choose.

    Please contact Jenny at the Donald Beasley Institute (the company contracted to do the survey) for a link to complete the survey: jconder@donaldbeasley.org.nz.

    I've copied some of the information and survey questions below.

    Purpose of the Disability Strategy:
    Definition of disability:
    Questions (questions 1-7 are quick tick-box types):
     
    rvallee, Esther12, ukxmrv and 2 others like this.
  2. Andy

    Andy Committee Member

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    I would have thought that was worth being a separate new thread @Ravn to increase its visibility?
     
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  3. Subtropical Island

    Subtropical Island Senior Member (Voting Rights)

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    Maybe. But it needs a post on this NZ and Pacific Islands thread to direct locals to notice it. It’s a very specific location (in a global sense). Assuming you need to live in the Southern District to apply to get the link, numbers won’t be huge. ...or is it open to all NZers?/interested parties?
     
    Ravn and Hutan like this.
  4. Ravn

    Ravn Senior Member (Voting Rights)

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    I put it into this thread for the same reason @Subtropical Island points out, it's primarily of local interest. But I don't have any strong feelings about it so feel free to copy to a new thread if you think that would be best.
    Just to be sure, I reread the email I received and the introductory information for the survey. To me both do read as being directed specifically at people living within the SDHB area. Though there's nothing in there that specifically states that others can't comment, but I suspect that's because it didn't occur to them anybody would think of it.

    Maybe some Kiwi from another region could try to request a link, being honest about their location of course, to find out?

    Also, a submission from a national organisation like ANZMES should be acceptable I should think. I've forwarded my survey invitation email to them and also to the local ME association MEISS.
     
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  5. Hutan

    Hutan Moderator Staff Member

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    The Canterbury District Health Board (in the South Island of New Zealand) is offering a scholarship for a specialist doctor or GP based in the Canterbury region to attend the forthcoming Emerge conference in Australia. This scholarship has been funded by the local patient support group ME/CFS Canterbury as part of an ongoing project to build expertise in ME/CFS in the doctors and other medical professionals in the region.

    Many thanks to the Emerge team who have generously provided free conference attendance for the scholarship recipient. Thread here about the conference. @Simone

    Please share the opportunity with anyone who might be able to help find good quality applicants. Applications close on February 14th 2019, so there isn't much time.

    @RoseE @Caramel_Cat

    Screen Shot 2019-02-06 at 5.00.44 PM.png
     

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  6. Ravn

    Ravn Senior Member (Voting Rights)

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    Just received the following email about the chance to have a say in a major review of our NZ health system:
    Extract from the website mentioned in the email:
    Survey questions, phase 1:
     

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