News from Canada

The Sick Times has a story on the "contradictory" and "deeply concerning" Canadian LC guidelines:

https://thesicktimes.org/2025/07/08...idelines-contradictory-and-deeply-concerning/

Includes some FOIed emails from Paul Garner, who was trying to influence the process:

https://www.documentcloud.org/documents/25980905-2025-gr-001-2025-05-28-disclose-documents-letter-1/
This is really important. Given the FOIs from the Nice process showed that another set of Uk people were trying to do the same there. And I don't think these people are necessary unconnected, this is clearly a tactic the particular area seems to think itself entitled to do and works (otherwise they wouldn't do it again? would they?).

I find this sort of thing quite shocking and it is important insight that people know it went on. Who knows how commonplace it has been for how long, and whether much of this happens with other conditions and if it is treated the same in response etc.

I don't know much about FOIs and whether it would be possible to have a thread specifically on this because if it is possible without issue this is important enough I think to have a threat with its own titles (for searchability within s4 and from search engines)

I've only scanned this so far but it would also be very useful to analyse the context so that I can work out who the (many) individuals are that he seems to be contacting, and the timing of these.

But also check whether this really is unusual and is actually basically us watching someone smarm and elbow their way into something and influencing with suggestion the make-up etc by doing so. Lots when they get bombarded with emails think there is no harm as they are taking them with a pinch of salt when those doing it are aware that the drip, drip, drip moves the thinking (the goal wasn't the exact demands, just the nudging things from centre to where they wanted it to be, or to have some other element brought in 'to placate' and then go from there once its on the agenda etc).
 
To develop the CAN-PCC guidelines, McMaster University’s GRADE Centre collaborated with Cochrane Canada, an arm of the Cochrane Collaboration.

I think I am on the verge of spotting the problem here.
Genuine question as to whether these are actually the same people, and whether the individuals combined in this are actually an overlap with the membership of another group/association/collective (eg coffi or the psychosomatic x, y, z) and could have been described as such instead?
 
The Sick Times has a story on the "contradictory" and "deeply concerning" Canadian LC guidelines:

https://thesicktimes.org/2025/07/08...idelines-contradictory-and-deeply-concerning/

Includes some FOIed emails from Paul Garner, who was trying to influence the process:

https://www.documentcloud.org/documents/25980905-2025-gr-001-2025-05-28-disclose-documents-letter-1/
Has the highlighting in these documents been done by Simon?

I have absolutely no doubt that Garner is trying to influence, and may have already influenced, other guidelines.
 

National survey finds virtual health ‘essential’ for Long COVID support: SFU report​

 
I will forever be majorly dumbfounded that the notion of making health care more accessible is mostly a non-starter. It's universally beneficial to all services, but there is no other form of service where the users benefit more. It's so much more efficient and less expensive overall.

And even having by now solved all the technical hiccups, it's just... resisted. Of course that's probably mainly because the capacity doesn't exist, and that restricting access is just a conveniently hidden way of excluding people out of it. There is not enough health care for everyone, but it's too politically difficult to admit, so this is how it plays out.

In a sane society, virtual health care would have been the norm for over a decade. It's such a no-brainer. Not just for chronic illnesses like LC either. Humans are so freaking weird all the damn time.
 
An American ALS patient died alone after paying $84K US in pursuit of healing at controversial Saskatchewan facility

Susie had come to Saskatchewan from North Carolina three months earlier, chasing the promise of healing offered by Dayan Goodenowe and his Dr. Goodenowe Restorative Health Center in Moose Jaw. It’s a private, unregulated facility that claims “a 100 per cent success rate in stopping the progression and in restoring function of people with ALS.”

Goodenowe maintains that every person who enrolls in the program offered at the centre leaves in better condition than when they entered.

In her desperation, Susie put her home up for sale to pay the $84,000 US fee.
 
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As women with ‘invisible illnesses’ struggle to be believed, a report on chronic pain could help

Medical professionals say a 2021 report supported by Health Canada could have a major impact on how the medical system can better understand chronic pain and the best ways to diagnose it — something that has been considered a major weakness in health care up to this point.

But with its release during the height of COVID-19 pandemic, the report flew under the radar, and some doctors and advocates are hoping that can chanage.

There is a wide range of chronic illnesses that are not always visible, including autoimmune diseases such as lupus and endometriosis, and chronic pain and fatigue conditions such as fibromyalgia and myalgic encephalomyelitis, commonly called chronic fatigue syndrome or ME/CFS.


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I find the whole "blaming the pandemic for every failure of medicine" to be sickening and completely unprofessional. Especially when it was no later than 2022 when the pandemic was declared over. After months and months of saying it and insisting that the next wave would be the last. Appalling dereliction of duty. I've rarely seen such a display of ineptitude and irresponsibility.
 
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