News from Aotearoa/New Zealand and the Pacific Islands

Dolphin said:
New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
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In the past year, 18.8% had visited an emergency department, compared with 12.8% of the general population, and 32.8% had been dispensed 10 or more medications, compared with 14.2%.

The study also hinted at diagnostic inequity because Māori and Pasifika were under-represented.

"It is certainly not consistent with the general trends of benefit use in the population.

"So a low percent of Māori, low percent of Pasifika in this ME group on a benefit is very different to the distribution of ethnicity among that other benefit group.

"There is some evidence around access and equities of access to diagnosis."

Long-term data on employment, unemployment and benefit reliance showed how debilitating the condition was, he said.

Only 18.3% of people with ME/CFS were employed, compared with 83.8% of the general population.

Even when looking back one, two or five years, about half of those affected had earned no labour-market income in the preceding five years.
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Dolphin said:
New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
Click to expand...
Just guessing but could well be the study discussed in this video:

https://www.s4me.info/threads/nz-an...scholarships-starting-2023.33465/#post-566568

There’s some further discussion about the preliminary data presented in the video in that thread
 
Dolphin said:
New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
Click to expand...
"They are pretty hard for the government to turn a blind eye to."
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Oh, I bet they will. On the strong recommendation of their medical advisers. Because reasons. Penis envy, I think is how it went? Old piss in ancient bottles. Something like that anyway.
 
Saw this on FB. Don’t know anything more about it but looks like Kimberly and Sam are having fun fundraising
”YouTube description” said:
Do-A-Dare for M.E. Episode 1: Can Sam Smith Hold A Tune? The Traitor’s NZ winner Sam Smith joins me on Do-A-Dare for M.E. to help raise money for ME Support NZ, a charity that supports people with ME/CFS and long COVID in New Zealand. Today I’m giving Sam 3 dares to do. He’ll then have to set a price for each dare. If the price for a dare is raised in donations to our GiveALittle page, Kimberly’s Spoons, he’ll then have to do that dare. We have a few questions relating to the dares though: Can Sam Smith hold a tune? Is he allergic to dairy products? How does he feel about supermarkets and black marker pens? Do donate towards a dare go to: www.givealittle.co.nz/fundraiser/kimberlys-spoons
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Mel Abbott is excited about her next GP presentation.
“Only a couple of weeks till I present at the GP Conference again! Here is my latest topic. I have written a whole new presentation about how to recognise the emotion patterns behind various chronic illnesses, as well as the latest scientific research to show the link between emotions and illness!
I LOVE presenting at the GP Conference! I have done it about 5 times now and been voted Best Speaker out of 200 speakers TWICE, and was 2nd another time. I LOVE that doctors are so keen to expand their knowledge into the mind-body arena these days. Doctor's referrals are now my 2nd biggest source of clients (behind word of mouth). When doctors and alternative practitioners are working together, we will get the best outcomes for our people!”
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