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New Liberty Protection Safeguards will prioritise timely care of the vulnerable - Simon Wessely

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Woolie, Jul 15, 2018.

  1. Woolie

    Woolie Senior Member

    Messages:
    2,918
    That is a terrifying story, @Peter Trewhitt. Poor woman. If what they did was legal, then it really shouldn't have been. I don't understand why suspected criminals have the right to representation, whereas people who've clearly done nothing wrong have no right to an advocate when decisions like this are made about them.

    I worry too about people deemed incapable of consent because of mild intellectual disabilities. Its often just assumed that they are incapable of making any decisions about their welfare and future under any circumstances - when in fact, they may be able to contribute, if provided with a good advocate who takes the time to explain the issues to them.
     
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
  3. Sarah

    Sarah Senior Member (Voting Rights)

    Messages:
    1,494
    I've also wondered about this. Patients who are sufficiently impacted by confusion or dementia that their inpatient stay may be prolonged for that reason are going to provide informed consent to participate in the HOME Study?

    I would have thought those who are not impacted or are somewhat impacted by confusion or dementia but have capacity to provide informed consent, are much less likely to have their hospital stay prolonged as a result of confusion or dementia in the first.
     
  4. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,734
    Seems UK is heading in the direction of Germany. This is so troubling!

    It's always similar: "We are SO concerned about the vulnerable [we define who's useless - sorry, vulnerable], therefore to make treatment better we need to take away, sorry, restrict their basic rights. We'll take a close look at the situation in order to carefully come to a decision; limiting one's liberty will remain the exception." UN human rights comission critisizes this practice harshly, but who cares? Who needs basic human rights at all?

    In Germany, uncountable examples show that decisions are not carefully made, there is no care at all, and there is a high degree of abuse.
    As always, there are some pleasant exceptions.

    One has to understand, after incapacitation a human being is not viewed as a human being anymore, you have legally no will and nobody has to care about what you say or want.
     
    alktipping, Hutan, EzzieD and 7 others like this.
  5. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,666
    In the mid 1990s I did a lot of work on advocacy and equal opportunities for people with communication disability with Social Service staff in Sheffield. There were fantastic developments and a real will by service managers to empower those without a voice. However, with the onset of cut backs and the deliberate appointment of managers willing to dismantle services, the will and the opportunities to empower people needing communication support have faded.

    There have been similar cultural changes in health, possibly also corresponding with the growth of psychosocial models of ME and the willingness to disregard the patient experience. Certainly in health in the late 1990s and since, an ability to disregard the views of staff and service users has become an asset for service managers and planners.
     
  6. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,257
    Location:
    UK West Midlands
    its not just physically restrain people - the chemical cosh - which I saw applied to parent with dementia when they were still able to walk and which rendered them virtually immobile. Im sympathetic to folks having to cope with wandering and challenging behaviour but there's a difference between medicating to calm someone down and turning them in to complete zombies.
     

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