New book: "M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome"

It is good in many ways, but I found for the first half I was wondering whether she had ME or burn out from doing a ridiculously large number of hours working as well as being a mother of young kids. I wondered how many other doctors would just think, OK here's one who couldn't hack it like we did and had to drop out.

Mixed feelings.

 

Or maybe that helps some of them relate to it more easily.

 

The group seems to have a diverse membership but attracting a fair few fairly recently diagnosed folk and people currently dealing with nhs clinics, folk asking about the usual suspect “treatments” and anything else that pops up on google. Dr H is pretty forceful in opposition to the NLP type brigade and explaining CBT is not a cure and GET is harmful. Which I believe is really positive in educating newer patients as well as those who haven’t been aware of the science and politics. There are some odd posts going up as well from members but so far I think the group is a positive. Element of selling the book but some positives there as well by suggesting once you’ve read it giving it to your GP with a covering letter from Dr H with key message about NICE guidelines and PACE. Not a bad idea which some people are doing. I am going to try this in the new year with my GP to see if it helps with awareness. I realise it may be water off a ducks back but I hope as something a bit different there may be a chance it could get read....