MPs are launching an inquiry into Endometriosis affecting 1& a 1/2m in the UK, to get better care for the condition

[Cinders66]

https://www.bbc.co.uk/news/health-49897873

these quotes are the bit relevant to our advocacy efforts (I think we should be aiming for some parliamentary intervention either an inquiry or a strategy set up ) but there’s lots of information regarding symptoms, disability and pain and treatment of the condition if people are interested

More than 13,500 women have taken part in BBC research revealing the devastating effect of endometriosis.

Half said they had had suicidal thoughts, and many said they rely on highly addictive painkillers.

Most also said endometriosis - involving painful periods - had badly affected their education, career and relationships.

MPs are to launch an inquiry into women's experiences of endometriosis following the research.

Anna Turley MP, a member of the All-Party Parliamentary Group for Endometriosis which will carry out the inquiry, said: "It wasn't until I was hospitalised and had the diagnosis that I realised how little attention endometriosis receives, how limited research funding is, and how many women are misdiagnosed."

She said the data gave "millions of affected women a voice" and the APPG would be calling on the government to act.

Emma Cox, CEO of the charity Endometriosis UK, which helped gather the women's testimonies, said: "It cannot be overstated the devastating impact this condition is clearly having on people's physical and mental health.

"Without investment in research, a reduction in diagnosis time - which averages at a shocking 7.5 years - and better access to pain management, women will continue to face huge barriers in accessing the right treatment at the right time."

 

[Dx Revision Watch]

https://www.bbc.co.uk/news/health-49897873

these quotes are the bit relevant to our advocacy efforts (I think we should be aiming for some parliamentary intervention either an inquiry...

Be careful what you wish for...

2005-2006:

http://www.erythos.com/gibsonenquiry/

http://www.erythos.com/gibsonenquiry/Report.html

Inquiry into the status of status of CFS / M.E. and research into causes and treatment treatment November 2006

Group on Scientific Research into Myalgic into Myalgic Myalgic Encephalomyelitis (M.E.)

http://www.erythos.com/gibsonenquiry/Docs/ME_Inquiry_Report.pdf

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Commentary on the "Gibson Report":

https://twentysixsoldiersoflead.wor...ughts-on-the-gibson-report-by-angela-kennedy/

More thoughts on the Gibson Report from Angela Kennedy – revisited

August 28, 2009

 

[Cinders66]

Be careful what you wish for...

2005-2006:

http://www.erythos.com/gibsonenquiry/

http://www.erythos.com/gibsonenquiry/Report.html

Inquiry into the status of status of CFS / M.E. and research into causes and treatment treatment November 2006

Group on Scientific Research into Myalgic into Myalgic Myalgic Encephalomyelitis (M.E.)

http://www.erythos.com/gibsonenquiry/Docs/ME_Inquiry_Report.pdf

----------------

Commentary on the "Gibson Report":

https://twentysixsoldiersoflead.wor...ughts-on-the-gibson-report-by-angela-kennedy/

More thoughts on the Gibson Report from Angela Kennedy – revisited

August 28, 2009

I think that we Can hope for better from future attempts, even if the first had flaws and failures and perhaps didn’t get used as it could have been.
If not we are just waiting on small levels of research and a modification of NICE to change things in Uk

i was impressed by the snp cancer dr at the HoC debate, if we could re-form an APPG and have a Scottish cancer surgeon represent the case for ME to get a fairer deal I think that would be great and we are in a different place to 2005, more Is known, psychologists being key players , the experts I just don’t think is acceptable anymore, we have an advocacy wing in existence and are post IOM report etc.