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Medical Independent: Is it just ME or is this a real disease?

Discussion in 'General ME/CFS News' started by Cheshire, Oct 18, 2017.

  1. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Solstice, ahimsa, Sly Saint and 12 others like this.
  2. Valentijn

    Valentijn Not a moderator

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    The author doesn't seem to have involvement with ME/CFS, but learned about it from the novel written by Nasim Marie Jafry:
    He talks about the downfall of PACE a fair bit, which gives us a look from an outsider's perspective:
     
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  3. Hutan

    Hutan Moderator Staff Member

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    Thanks, typo in the title might be worth fixing
     
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  4. JCB

    JCB Senior Member (Voting Rights)

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    There was a person with this name, Dr Marc-Alexander Fluks, on forums I used many years ago. He used to be reasonably well known, I thought. I was away from forums for some years before joining PR so I have no idea about his recent involvement or otherwise.
     
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  5. Nasim Marie Jafry

    Nasim Marie Jafry Senior Member (Voting Rights)

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    (Post merged from duplicate thread)

    Not sure if many have seen this comment piece from two weeks ago in The Medical Independent, a fortnightly Irish medical journal. I met the science writer by chance during summer and after chatting, he became very interested in PACE, which he was previously unaware of (having worked on blood/Coxsackie himself in virology lab in 80s he was aware of ME but had not followed the story). He hopes to write more on ME and is very tuned into our truth, a real boon to have a writer with his qualities (an actual scientist/biochemist turned writer) on our side.

    'George Winter examines the evolution of recognition for myalgic encephalomyelitis (ME)':

    http://www.medicalindependent.ie/100315/is_it_just_me_or_is_this_a_real_disease

    (*The stock photo and title 'Is ME real disease?', of course, are not the writer's doing, but the substance/subtitle is excellent.)
     
    Last edited by a moderator: Oct 31, 2017
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  6. Nasim Marie Jafry

    Nasim Marie Jafry Senior Member (Voting Rights)

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    Love the merging, it's like magic - thank you! (you can tell I am not v good at forums).
     
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