[ME/CFS Research Foundation] International ME/CFS Conference 2026 on 7–8 May - register for free now!

[Jaybee00]

ME/CFS Research Foundation

events.mecfs-research.org

A mix of great speakers and a couple of not-so-great ones.

 

[hummingbird95]

Will anybody be posting summaries/responses to the talks here or elsewhere online? As much as I would love to attend, I just dont have the cognitive capacity.

 

[Jaybee00]

Bumping—reminder to register. Fluge speaks on Friday. Ponting on Thursday.

 

[Jaybee00]

 

[V.R.T.]

What presentations is everyone looking forward to/interested in?

 

[Murph]

Five hours til this kicks off! If you're there please post something. A selfie with @MelbME or even a pic of the coffee stand in the conference hallway!


Scheibenbogen, Fluge and Ponting are three of first five people on stage so it starts with a bang. Then Michelle "PET tracer" James is after them.

I believe the whole thing is meant to be broadcast live too. Register: https://cloud.seatable.io/dtable/forms/custom/conference2026en/

 

[Murph]

What presentations is everyone looking forward to/interested in?

Lots but there is a study on ATP phosphocreatine ratios mid afternoon Thursday that I want to see. Phosphocreatine is an overlooked energy source, used for the very first few seconds of energy. Creatine kinase is supposed to catalyse its use, Wust found less CK than he expected, I reckon there's a clue floating round in that space if we keep looking!

 

[SNT Gatchaman]

Evidently 6500 watching online. Chris gave a great opening talk.

Looking forward to Michelle James shortly on whole-body PET, followed by Qiang Yu talking about their team's advanced MRI diffusion study ("neuroinflammation") that we had questions re the interpretation in this thread, and then another neuroimaging talk. The last is on functional MRI that might complement their previous structural studies eg this one recently.

 

[ME/CFS Science Blog]

 

[Jaybee00]

This account is tweeting

 

[ME/CFS Science Blog]

 

[ME/CFS Science Blog]

Looks like Qiang Yu and collaegues updated the interpretation of their Diffusion-based neuroinflammation imaging (NII)

 

[V.R.T.]

Disappointing about HLA! Did he mention the X chromosome analysis at all?

 

[V.R.T.]

Did Michelle James say when they plan to publish?

 

[Murph]

Perhaps the 6500 viewers is more than they expected- the stream is blurry about 80% of the Time!

 

[BrightCandle]

Perhaps the 6500 viewers is more than they expected- the stream is blurry about 80% of the Time!

I have attended all of the online conferences since 2022 or so and typically its 200-600 depending on the conference. These are definitely bigger numbers than usual.

 

[Murph]

I have attended all of the online conferences since 2022 or so and typically its 200-600 depending on the conference. These are definitely bigger numbers than usual.

And loads of young researchers you've never heard of speaking! Very positive signs.

 

[Jonathan Edwards]

I didn't manage to register for this but local UCL colleagues are attending.

I don't think we expected HLA genes to come up but I wonder why Chris seems to be suggesting that BTN2A1 is not immunological. Maybe it isn't but it seems likely on the face of it.

 

[Eleanor]

Those of us who block trackers on our computers/phones can't see tweets - we either get blank space or an error message. So it would be really useful and appreciated if the text of tweets could be copied and pasted into posts. Sorry for the extra work!

 

[Sean]

...or a reduced extracellular space.​

Interesting.