"might" ???
How did this not internally trigger a major overhaul by the Trust of their handling of ME/CFS cases?
Just sickening. But sadly not in the slightest bit surprising.
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Maeve Boothby O'Neill - articles about her life, death and inquest
- Thread starter dave30th
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How did this not internally trigger a major overhaul by the Trust of their handling of ME/CFS cases?
Andy
Retired committee member
Times: ME patient ‘would have received better care if she had eating disorder’
https://archive.ph/2024.07.31-04275...-me-patient-tlhflsjqc#selection-2117.0-2120.0
https://archive.ph/2024.07.31-04275...-me-patient-tlhflsjqc#selection-2117.0-2120.0
Andy
Retired committee member
Trial By Error: Dr Weir’s Letters on Treatment of Maeve Boothby O’Neill
William Weir is an infectious disease physician in London who has treated many ME/CFS patients. He has been involved in some of the ongoing cases in England in which severely ill teenage girls and young women, and their families, have been in conflict with their local hospitals about the best approach to treatment. In general, hospital consultants and other health care providers have bought into the standard propaganda that ME/CFS patients need either cognitive behavior therapy or graded exercise therapy, most recently expressed in a weekend opinion piece from a prominent member of the CBT/GET ideological brigades. (I responded to that opinion piece here.)
Dr Weir testified last week at the ongoing inquest into the death of Maeve Boothby O’Neill, being held in Exeter, England. He read into evidence two letters that he wrote to express his concerns about the case. The first, dated May 25th, 2021, was addressed to Julia Prague, a consultant endocrinologist at the Royal Devon and Exeter Hospital, where Maeve was hospitalized three times in the months before she died in October, 2021. The second, dated September 9th, 2021, was addressed to Suzanne Tracey, the former CEO of the Royal Devon University Healthcare NHS Foundation Trust.
Because they were read into evidence, both letters can be posted publicly–as I have done below.
https://virology.ws/2024/07/31/tria...-regarding-treatment-of-maeve-boothby-oneill/
William Weir is an infectious disease physician in London who has treated many ME/CFS patients. He has been involved in some of the ongoing cases in England in which severely ill teenage girls and young women, and their families, have been in conflict with their local hospitals about the best approach to treatment. In general, hospital consultants and other health care providers have bought into the standard propaganda that ME/CFS patients need either cognitive behavior therapy or graded exercise therapy, most recently expressed in a weekend opinion piece from a prominent member of the CBT/GET ideological brigades. (I responded to that opinion piece here.)
Dr Weir testified last week at the ongoing inquest into the death of Maeve Boothby O’Neill, being held in Exeter, England. He read into evidence two letters that he wrote to express his concerns about the case. The first, dated May 25th, 2021, was addressed to Julia Prague, a consultant endocrinologist at the Royal Devon and Exeter Hospital, where Maeve was hospitalized three times in the months before she died in October, 2021. The second, dated September 9th, 2021, was addressed to Suzanne Tracey, the former CEO of the Royal Devon University Healthcare NHS Foundation Trust.
Because they were read into evidence, both letters can be posted publicly–as I have done below.
https://virology.ws/2024/07/31/tria...-regarding-treatment-of-maeve-boothby-oneill/
Nightsong
Senior Member (Voting Rights)
Inquest now on a five-minute break after the testimony of Dr Fox; will be hearing Beth Thompson next. Also apparently a statement has been received from Dr Shenton (Maeve's GP). Lots of audio/technical problems today. Fox gave a very biopsychosocial explanation of ME and also gave a very unconvincing, backtracking explanation of his "feel it is functional" comment in the notes. Will write up a summary later if there is interest.
ETA: Inquest has resumed with the testimony of Beth Thompson (RD&E), who was at the relevant time the dietician team lead.
ETA: Inquest has resumed with the testimony of Beth Thompson (RD&E), who was at the relevant time the dietician team lead.
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Lou B Lou
Senior Member (Voting Rights)
You're doing a fantastic job, Nightsong. I'm sorry we don't seem to have anyone else well enough to provide such detailed summaries. I thought about signing up to listen, but know I'm not up to writing notes while listening.
Please only provide feedback at your own pace and if you feel it's not harming your health.
Binkie4
Senior Member (Voting Rights)
Any news on what is happening?
I have read that Dr Shenton's statement is being emailed to everyone but now cannot find the notice. Does this include those watching by video link? I registered for this so they have my email. Anyone know?
I haven't been able to watch/listen this morning and door was locked when I tried about 10 minutes ago.
edit: I see @Mr Magoo has posted that Dr Shenton's statement has been sent to everyone. Thanks. Does this include those online?
I have read that Dr Shenton's statement is being emailed to everyone but now cannot find the notice. Does this include those watching by video link? I registered for this so they have my email. Anyone know?
I haven't been able to watch/listen this morning and door was locked when I tried about 10 minutes ago.
edit: I see @Mr Magoo has posted that Dr Shenton's statement has been sent to everyone. Thanks. Does this include those online?
MrMagoo
Senior Member (Voting Rights)
It will be to those who have bundles/evidence I’d say. So the legal reps, Sarah, Sean
ukxmrv
Senior Member (Voting Rights)
We may have hit the crux of incompetence, inflexibility and disbelief? Beth Thompson.
'I appreciate with hindsight..
Best practise ...
Functioning gut
Will try to sit up to 45 degrees
Not aware of vomiting
Buying onto their belief it is a medical
I need to have a Consultant come in and agree a pathway
...needs to be treated as one of the eating disorder patients
Not only affects physical health but psychological health'
'I appreciate with hindsight..
Best practise ...
Functioning gut
Will try to sit up to 45 degrees
Not aware of vomiting
Buying onto their belief it is a medical
I need to have a Consultant come in and agree a pathway
...needs to be treated as one of the eating disorder patients
Not only affects physical health but psychological health'
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Lou B Lou
Senior Member (Voting Rights)
We've just got to get rid of that word "Tired". It's being repeated in the Inquest. "Tired" is the most trivialising word, it leads the general public and some/most medical/health professionals to think that ME 'tiredness' is something they may have experienced, or something close to it. Because of the word. Everyone has experienced tiredness. That word is sabotaging us
Binkie4
Senior Member (Voting Rights)
Absolutely.
MrMagoo
Senior Member (Voting Rights)
I’ve seen a tweet about the time leading up to NG tube, that Maeve had to sit up 3x30 mins in the days/week before it. Can’t find tweet yet. edit - see below
There’s a lot of detail in Beth Thompson evidence, dates, feeding amounts, discussions. Also comments that she’s reading her notes out really fast, and again there’s been sound and IT problems.
There’s a lot of detail in Beth Thompson evidence, dates, feeding amounts, discussions. Also comments that she’s reading her notes out really fast, and again there’s been sound and IT problems.
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