Long COVID Treatment Guide (Patient-Led Research Collaborative & RTHM)

[Formerhuman]

Obviously, there is a lack of scientific evidence to support these options, and there is a conflict of interest. I'd like to emphasize that such suggestions as I quote:

“Clopidogrel 75 mg is typically dosed once daily, and may be combined with aspirin and/or apixaban after very careful consideration of the risks associated with dual or triple therapy.”

are not only unevidenced but clearly dangerous for patients.

I can't help but mention the Paxlovid suggestion. There is no evidence of replication in people with LC. Two CTs failed. Why? Just why?

I believe the majority of clinicians don't use such sources of information in their clinical practice. Rather, it is a realm of moneymaking private clinics and we can't change it.

From my perspective, the bigger issue is that the same people and organizations who write such guides as the Mount Sinai guide or this one have influence over political decisions in the realm of ME/CFS and Long Covid. There is no funding for ME/CFS research. RECOVER-TLC is a total failure. After all, why do we need studies and trials if there are 41 options which are “especially helpful for…”?

 

[Felis Catus]

They're having a webinar Long COVID Treatment Guide: Understanding Potential Treatments

Join RTHM and Patient-Led Research Collaborative (PLRC) for a webinar on the new Long COVID Treatment Guide, featuring clinicians Dr. Binita Kane, Dr. Zachary Spiritos, Dr. Jennifer Curtin, and patient advocate Charlie McCone.

More info on the link.

 

[Jonathan Edwards]

This is the sort of thing that should get one struck off the medical register if it says what it looks like saying. But of course that does not happen very often.

 

[Hutan]

I didn't realise that Binita Kane is part of all this. She's not listed on the Patient-Led Research Collaborative website. It's certainly not a good look for any medical doctor to be associated with that Long Covid Treatment Guide.

The webinar is on June 12 for most of the world.

 

[Ash]

It’s wild that’s there’s enough people with chronic illnesses that there is a viable “Hims” business model.

Theres even an AI integration:

Beta Program & AI Disclosure - RTHM

Important information about RTHM's beta features and AI system limitations.

www.rthm.com

Grifting to new highs

 

[Felis Catus]

I didn't realise that Binita Kane is part of all this. She's not listed on the Patient-Led Research Collaborative website. It's certainly not a good look for any medical doctor to be associated with that Long Covid Treatment Guide.

Maybe they wanted to have an unrelated doctor on the panel who prescribes what they preach? They'll probably clarify the relation while introducing Binita at the webinar.

Binita interviewed Jennifer Curtin in 2024.